Judy

Thank you for your kind words and concern. It means so much. Im sure she did it to cover her self. No tests, exam, scans, just report. By the time I saw her I was fine (still a bit hyper/anxious but much better when I saw her). Her parting words to me when I finally saw her were "you have bigger problems than MS"....and that was the END of the appt. I have an appointment with a neuro/psych tomorrow. Lets see what he says. All I know is that I've been there for mri's, and seen dr a couple of times and they have not really told me anything. a couple lesions on brain, a couple on spine, old lesions, bla bla. But nothing except "here try this pill". I really had high hopes that this dr would work out.

But you are right, I will just do the best I can the next 3 mos and move on. Thanks so much for your concern and support.

So, she made an assumption based on a message she recieved from you through her assistant. She may have been covering herself in one respect but opened herself up to a possible lawsuit (medical malpractice). What if you didn't seize but had a stroke. She didn't know that. She just assumed.

Also, telling you that you have bigger problems than MS and just leaving you hanging like that was very unkind and somewhat harmful to your emotional state. I'd be asking her what she meant by that.

I'm so, so sorry you are being treated this way. It makes me upset to hear about the medical professionals treating patients this way. I am sure that if you called the DMV and stated that you don't know if you have a seizure and that the dr just made an assumption that you did without further testing, maybe they'll work with you or something. And, maybe, like Judy mentioned, once the 3 months is up you can find a new physician that will treat you much better.

Hang in there! I'm hoping and praying that all works out well for you.:hug::hug:

Yeah, that's beyond evil! Wow.

what a roller coaster
 

hi everyone

well, I did finally get a CT scan of my head....its normal. So it must've been a contradiction between the wellbutrin and my heart meds, specifically the arrhythmia drugs. I had a fainting/syncope type incident when I mixed Cymbalta with the heart drugs.

Anyway, first wellbutrin. disaster. then keppra. bigger disaster (manic like I have never experienced in my life. I was off the charts. Never have I experienced anything like that in my life). Off keppra. Then on lamictal. 2 weeks of a very low dose (25 mg) and I was more depressed ..... I was in a very deep very dark very dangerous hole. My only saving grace was that I knew it was because of the med interaction. So I'm going to "just say no" to any more antidepressants. They contradict with my heart meds. Maybe not everyone has that happen, but I did. So I'm don't with that crap. I will deal with my chronic low grade depression (dr thinks I'm BPII because my mood swing goes from depressed to less depressed).

Neuro was also unhappy that I refused tacfidera. I have pos JC virus and a 40% chance of a brain infection didn't seem like a good bet to me. She said well if you have a lot of bad luck maybe. (apparently she didn't read my file and the history etc.).

Anyway, just thought I would catch you up. Thanks so very much for you caring and support ... this has been an awful experience. And now looking for a new neuro. Or, no neuro. Honestly, I was managing my MS and other issues better with just a visit with primary dr. But I made myself go. I hadn't seen a neuro in over 5 years and some things were progressing (eyes, legs, etc.) but nothing is worth the hell I went through this last month.

janet

So based on what they found, will you be able to get your license back? I sure hope so as the issue was caused by the medications and not something else. Of note, Wellbutrin can cause seizures in some patients. One of the reasons I don't take it.

I don't blame you about not wanting to take any ADs. You haven't had good luck with them at all. Have you tried an SSRI (Selective Serotonin Reuptake Inhibitor? Cymbalta is an SNRI (Serotonin Norepinephrine Reuptake Inibitor) and Wellbutrin is a NDRI (norepinephrine-dopamine reuptake inhibitor). They each work differently. Since I didn't do well with Cymbalta, I won't take another SNRI. I was on Paxil and then Celexa which are SSRI's and did fine on them for the most part. Paxil was a little too sedating for me. Just something to keep in mind should you find yourself heading to the dark place. Once there, most of us need something to help us get out and stay out. I have been fortunate as I have not had to take Celexa for quite some time and am not taking any AD. Should I find my self heading in that direction, down for a few days, I know I can start back up. I know it will take me a bit but I needed to get off of them to see if I was allergic to it or not.

Take care of yourself!!! I am glad you CT scan was normal. That's encouraging. Did you talk to your doctor about doing an EEG?

Thanks Tkrik. All good questions. I'm not well versed on the alphabet soup of AD...i.e., SSRI/SNRI/NDRI etc. Dr wants to "introduce" me to Effexor in a couple of months but I'm very leary. Dr. did not request EEG. However, I did get a copy of an old EEG from my cardio when the first "incident" (i.e., syncope/seizure/wtf) happened at that EEG was normal. that was in 2010.

Its a journey....these mind and spine diseases, isn't it?
Thanks for your support. It helps.
janet

I'd be leery of Effexor too. I have friend that is on it and can't get off it. She said the side effects for her are awful. I also think it has raised her blood pressure.

yes, I've heard it has bad side effects. this is all so confusing. I doubt my perceptions and thinking so much right now, and I always doubt doctors. I get their expert opinion, suggestions, then I do my homework and make a decision, but these days I just don't know. That's some time down the line though so I do have time to think about it.

I haven't taken the Lamictal in several days.....and while I'm definitely not in the deepest darkest place, I'm definitely depressed as the day goes on. I wake up in morning and the committee is already up and at me. So I take a Xanax. So not anything I've ever had to do before.

I see my talk therapist tomorrow for 1st time in about a month. So I have so much to sort out I hope I get through it all in my 50 minute hour.

Thanks for the information and your thoughts. It helps!
janet

Janet - Sorry I didn't get to finish that post. But, it appears you have done some research on it as well. I'm glad you have a talk doctor's appointment tomorrow. I'm sure they'll be able to help you sort out not only the ADs, but all the other things you have been through as of late. :hug:

Hi Jnewk
 

Sometimes when things really are bad....this is the best possible place to be. Even though I don't know you, I understand what poverty does. Add a few medical issues and non- responding doctors, and you have more issues than you want. Truly, I hope things can get better for you. Hope you can find a physician that will treat you decent. Don't give up. There will be folks here that may have some good ideas on how to help. PM me, and I can list some agencies that may give a hand. ginnie:grouphug: