advertisement
Reply
 
Thread Tools Display Modes
Old 01-10-2014, 12:50 PM #1
JohnnyAppleSeed JohnnyAppleSeed is offline
Junior Member
 
Join Date: Jan 2014
Posts: 13
10 yr Member
JohnnyAppleSeed JohnnyAppleSeed is offline
Junior Member
 
Join Date: Jan 2014
Posts: 13
10 yr Member
Default Showing some troubling signs

Hey guys, I'm new here, and I'm sure you get a lot of these threads, so I'm going to try to keep mine as brief as possible( it's a tad bit long ). I didn't know where to post this, and this specific forum seems like a good starting point. Basically, when I was 20, I started to have switches in my back, which eventually went away.

About a year later, those twitches came back, and this time I had pain in my back, and one morning I woke up with my stomach hurting so bad I could hardly move, it went away and never came back. It's only been recently at 21 things flared up again and started getting weird, all sort of strange symptoms that come and go, or kind of stay. First off, my vision, for about two months, I was noticing my vision was weird, like things would slightly move, or I would lose track what I was looking at. Now, I have moments where I have hufe black lines, like in a cup formation, sweep by my vision, from left to right, sometimes Ill get a huge white line that flashes in front of me.

This has been coming and going for a month, also sometimes It feels my vision pushes forward, and I lose track for a split second, it's the weirdest thing. I have constant pressure in my head, and lately my neck has been tightening with it, and that pressure keeps pushing my head a bit, like small jerks in different directions, this seems to get better and worse, keeps switching around, Its almost like my head feels stuffy. For about a year it always feels like something has been stuck in my throat.

Sometimes I feel pressure on my right eye, like its projecting out a bit. Ive been having pain all over, like inside my ears, side of heads, my shoulder and arms, thighs, and sometimes feet and hands, It's like somebody really quickly stabs me with a knife, then it goes away and doesn't happen for a long time. I keep having weird weeks where I'm just tired all the time, and taking naps like 7 hours after being awake, then other days I feel fine. I'm having some minor body jerks every once in a while. When going to sleep, sometimes it feels like a motor is going off in my legs.

Getting lots of pain inside my ears every once in a while, and a couple of times my hearing would go away, and just hear ringing for 5 seconds, then the hearing comes back. I have times where I feel tingling like in my toes, foot or legs, almost like ants burst out of their antpile, and this only happens briefly, like 20 seconds. I also have times, where I feel this tingling ticklish buzz that goes off in my legs, only lasts like 3-5 seconds with no pain. It almost feels like its moving upwards to my thighs, like painless electricity.

I also have had nights where there's horrible pain in my cheek. It sometimes feels like there's tingling in my forehead and top of my nose and feels like wet spots on my head, like rain drops hit my head. Sometimes my right eye will get this sore very slight burning feeling. The last odd thing, is I have smoked marijuana since I was 18, and I always liked it, and it actually helped me to keep calm and do my work. Till I was Twenty-one, When I would smoke, I started to get these uncontrollable leg spasms, like they're having a seizure.

This has happened like 5 times, and I have had moments sober, where I start to get the feeling, but it goes away and never takes off. It's like my legs tighten up when it happens, and has the same pattern every time. Where it gets better and better for 20 minutes, then stops. Basically, I'm posting this to you guys because I want to some viewpoints on where I should be taking this doctor wise, and if you guys have any ideas if there's other things that resemble these symptoms. I went to a neurologist, and he's sending me for a MRI scan of my head tomorrow, but he said he thinks it will be normal. That's my question, if this MRI scan comes normal, where do I take this?

because I am not accepting that there's nothing going on as an answer. I know these things can be psychological, but I'm telling you, this stuff is not in my head, it's not normal to be sitting in class, and a feeling of a knife comes and stabs you and you flinch. Does this sound like possible MS at all? I'm a twenty one year old white male, and I do have some family history of neurological issues. My dad is 60, and has just recently had two seizures, they think he has epilepsy. His sister died when she was 14 from lupus, and my aunt has Myasthenia Gravis, and my grandma has had strokes.

These family members are all on my dads side as well. My parents also had me very late like, 39 years old both, which increase the chances of having bad genes. I'm very concerned something bad could be happening to me, even as I type this, I keep seeing some long white line moving across my vision, and like there will be small blank white holes every once in a while, it's hard to explain.

Sorry that is somewhat long, I'm just really looking for some opinions where to take this, because my body is telling me there is something going on, I can compare it to how I felt two years ago, and I 100 percent feel different, like something is just overall off with me. Not to mention, I have a cloudy feeling mentally, and have recently started becoming depressed before the attack of these symptoms.

Last thing I want to mention is that stomach pain I talked about earlier, came back a year later around a week ago, and I now sometimes feel throbbing pain on my lower right side of stomach, whatever that might mean. I also have a ton of muscle twitches all the time, mainly in my thighs, and calfes and strangely in my head. It just feels like my body wont relax the way it should. Thank you so much to those who read this and respond, I really do appreciate it and will respond to your comments.
JohnnyAppleSeed is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (01-10-2014), Erika (01-10-2014), Mariel (01-10-2014)

advertisement
Old 01-10-2014, 02:09 PM #2
Erika Erika is offline
Senior Member
 
Join Date: May 2012
Location: Canada
Posts: 1,647
10 yr Member
Erika Erika is offline
Senior Member
 
Join Date: May 2012
Location: Canada
Posts: 1,647
10 yr Member
Default

Welcome to our community.

Those symptoms certainly must be troubling.
Its good that you are seeing a neuro. The best thing that I can offer is to make sure that you share your family history as well as all of your symptoms with that doc. That will give your medical team a better idea of where to go once you get the MRI results back. That is just one of many test that you may have to get done. MS is often diagnosed through a process of elimination. Hang in there and please do let us know what your results are.

With love, Erika
Erika is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (01-10-2014), Mariel (01-10-2014)
Old 01-10-2014, 02:10 PM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Welcome Johnny, to NeuroTalk.

I'm so sorry for all of your nasty symptoms that bring you here, but so
glad you found us. We are a caring group of Peeps and will try to help
you, if we can.

As for your symptoms relating to MS, yes some could. They could also
be caused by other Neurological conditions and your Neuro will have to
figure that out....usually by a process of elimination.

You don't mention a Doctor, so I presume that you haven't seen one, for
this, yet. My next question would be, "what does your Doc think?

Let us know how you are doing.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (01-10-2014), Erika (01-10-2014), Mariel (01-10-2014)
Old 01-10-2014, 02:44 PM #4
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Default

Maybe you need to see a Gastroenterologist instead of a Neurologist, although that's a wild guess. Your abdominal pain suggest this, and the fact that it comes and goes.
Also, how's your nutrition? Taking adequate minerals, especially Magnesium and Calcium, might help those twitches and spasms.
Mariel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Erika (01-10-2014), SallyC (01-11-2014)
Old 01-11-2014, 03:13 PM #5
JohnnyAppleSeed JohnnyAppleSeed is offline
Junior Member
 
Join Date: Jan 2014
Posts: 13
10 yr Member
JohnnyAppleSeed JohnnyAppleSeed is offline
Junior Member
 
Join Date: Jan 2014
Posts: 13
10 yr Member
Default

Thank you for the responses. I have gone to a doctor and he wants to get an MRI of my brain. He told me if it's major, then he suspects possible MS. If not, he said we will take it from there. It's just really frustrating to me, when you have all of these neurological symptoms going off, that really interfere with your life. I'm at the end of my last year in college going strong, but now it feels like a brick got dropped on me, and that my concentration has decayed. I guess this is one of the most annoying parts to anything, being in pain and discomfort and you have no idea why. I seem to show a lot of MS signs, yet at the same time, I seem to show signs that aren't very related to MS, and I never have had blurred vision or double vision, which are hallmark ms signs. So confusing . I will keep you guy updated, as I get the scan Monday, but in the meantime, I'm going to try stretching, exercising, eating well, sleeping well, and keeping my stress to an all time low in the meantime. Also I want to mention, which I didn't before. I have had accident in the past, when I was 20 I had two occasions where I hit my head, one was when I swung my head back, and slammed it into a thick concrete wall, and the other time I ran straight into a metal pole which cut my forehead open a bit. I also recently fell down a concrete staircase like a month ago, but I didn't hit my head, landed on my butt and back. So makes also wonder if I did something in that regards. I also got a mild emg test done on my spine, and it showed like half the nerves of my back and neck were in the sever stressed range. How I feel now
JohnnyAppleSeed is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Erika (01-11-2014), SallyC (01-11-2014)
Old 01-11-2014, 03:45 PM #6
JohnnyAppleSeed JohnnyAppleSeed is offline
Junior Member
 
Join Date: Jan 2014
Posts: 13
10 yr Member
JohnnyAppleSeed JohnnyAppleSeed is offline
Junior Member
 
Join Date: Jan 2014
Posts: 13
10 yr Member
Default

Quote:
Originally Posted by Mariel View Post
Maybe you need to see a Gastroenterologist instead of a Neurologist, although that's a wild guess. Your abdominal pain suggest this, and the fact that it comes and goes.
Also, how's your nutrition? Taking adequate minerals, especially Magnesium and Calcium, might help those twitches and spasms.
Yeah, I have actually thought about that a bit, it's just odd though I get these pains in other parts of body as well. I wonder if something gastrointestinal could create neurological signs such as mine , very odd to me, the symptoms are all over the place, and don't seem to always relate.
Actually I just started taking a vitamins again, which have magnesium and calcium, and while it doesn't seem to be curing everything, It had decreased by like 20 percent. A lot of these symptoms flare. The only thing that seems to always be there is that feeling of something is in my throat, with a weird pressure feeling in my head, that gives me these feeling of being zapped, like yanked on. Like my head and neck (back and inside my throat are congested)and only want to relax sometimes, this seems to happen when I'm sitting, when standing, it decreases a lot.
JohnnyAppleSeed is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Erika (01-11-2014), SallyC (01-11-2014)
Old 01-11-2014, 05:25 PM #7
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Quote:
Originally Posted by JohnnyAppleSeed View Post
Thank you for the responses. I have gone to a doctor and he wants to get an MRI of my brain. He told me if it's major, then he suspects possible MS. If not, he said we will take it from there. It's just really frustrating to me, when you have all of these neurological symptoms going off, that really interfere with your life. I'm at the end of my last year in college going strong, but now it feels like a brick got dropped on me, and that my concentration has decayed. I guess this is one of the most annoying parts to anything, being in pain and discomfort and you have no idea why. I seem to show a lot of MS signs, yet at the same time, I seem to show signs that aren't very related to MS, and I never have had blurred vision or double vision, which are hallmark ms signs. So confusing . I will keep you guy updated, as I get the scan Monday, but in the meantime, I'm going to try stretching, exercising, eating well, sleeping well, and keeping my stress to an all time low in the meantime. Also I want to mention, which I didn't before. I have had accident in the past, when I was 20 I had two occasions where I hit my head, one was when I swung my head back, and slammed it into a thick concrete wall, and the other time I ran straight into a metal pole which cut my forehead open a bit. I also recently fell down a concrete staircase like a month ago, but I didn't hit my head, landed on my butt and back. So makes also wonder if I did something in that regards. I also got a mild emg test done on my spine, and it showed like half the nerves of my back and neck were in the sever stressed range. How I feel now
We have a Traumatic Brain Injury forum here.

http://neurotalk.psychcentral.com/forum92.html

They are very experienced and helpful regarding concussive injury and the symptoms that arise with that. I do hope you told your doctor about your head injuries in the past, as well.

What is a mild EMG? EMG will show conductivity problems where there is nerve damage.

Do you live in a dorm at school?
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Last edited by mrsD; 01-11-2014 at 06:13 PM. Reason: fixing spelling.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Erika (01-11-2014), Kitty (01-12-2014), SallyC (01-11-2014)
Old 01-13-2014, 01:26 PM #8
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
Default

Well, I'm really sorry for what you're going through. I am going to post the three things below that I have and can relate to:

First off, my vision, for about two months, I was noticing my vision was weird, like things would slightly move, or I would lose track what I was looking at.

Getting lots of pain inside my ears every once in a while, and a couple of times my hearing would go away, and just hear ringing for 5 seconds, then the hearing comes back. I have times where I feel tingling like in my toes, foot or legs, almost like ants burst out of their antpile, and this only happens briefly, like 20 seconds. I also have times, where I feel this tingling ticklish buzz that goes off in my legs, only lasts like 3-5 seconds with no pain. It almost feels like its moving upwards to my thighs, like painless electricity.

mention is that stomach pain I talked about earlier, came back a year later around a week ago, and I now sometimes feel throbbing pain on my lower right side of stomach, whatever that might mean. I also have a ton of muscle twitches all the time, mainly in my thighs, and calfes and strangely in my head.


Now in a nutshell, I've had a TON of testing that I will be happy to go over in a private message with you. 3 MRIs as of April to give you an idea. The only thing testing wise that I have problems with are VENG (eye tracking test), Periodic Limb Movement Disorder based on sleep study, and I have Myasthenia Gravis. I had a ton of stomach pain a year and half ago that was so bad, I would sweat. I had my gallbladder removed but I still have periodic issues where I feel like a giant gas bubble is in my chest and it's hard to breathe. I am also being tested for small fiber neuropathy due to the pain in my arms in legs. I'm sorry man that you're going through this. I'm only 27, but was DX with MG in 2008.

One last thing, I was tested for MG (which was originally suspected as MS) because of throat and tongue problems. I felt like my throat was kind of collapsing or something was stuck. My tongue would also feel number to me, which is actually weakness instead. These can be caused by anxiety, which is what I was also told it was until the MG antibody test came back positive. I started with bulbar issues.
strizzlow20 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (01-13-2014)
Old 01-13-2014, 05:54 PM #9
JohnnyAppleSeed JohnnyAppleSeed is offline
Junior Member
 
Join Date: Jan 2014
Posts: 13
10 yr Member
JohnnyAppleSeed JohnnyAppleSeed is offline
Junior Member
 
Join Date: Jan 2014
Posts: 13
10 yr Member
Default

MRS. D -


Hey, thanks for the response. I did let my doctor know, and he said that he's going to definitely keep that in mind. He wants to get a scan of my head first to rule out many things. He said the main thing he's concerned about is possible MS. I would get a MRI of my spine too, but it's so much money.. I can't afford it.. Yes, I do live at a dorm in school, have been the last 3 years.
JohnnyAppleSeed is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (01-13-2014)
Old 01-13-2014, 05:56 PM #10
JohnnyAppleSeed JohnnyAppleSeed is offline
Junior Member
 
Join Date: Jan 2014
Posts: 13
10 yr Member
JohnnyAppleSeed JohnnyAppleSeed is offline
Junior Member
 
Join Date: Jan 2014
Posts: 13
10 yr Member
Default

strizzlow20 -

Thanks for the reply.. That's horrible you were diagnosed with that at such a young age, that's pretty uncommon. I don't think that's something I would have, but you saying you had so many similar symptoms concerns me, because I have a first-degree aunt with MG, and she's not doing to well. Are you a male or female, just curious.
JohnnyAppleSeed is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (01-13-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 12:35 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.