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#1 | |||
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Junior Member
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I'm all new to this and my Neuro was adamant about me not pointing space heaters at myself and limiting the amount of time I use heating pads.
My muscles tighten so bad in the cold I can't even walk. I've been this way my whole life and now that I have permanent disabilities I can not compensate by going slower in the cold. I pretty much need crutches on a cold day and often don't use assistive devises when it's warm outside. Is anyone else like this? I'm at my best when it's 65F - 80F degrees outside. |
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"Thanks for this!" says: | Grammie 2 3 (01-16-2014), SallyC (01-14-2014) |
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#2 | |||
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In Remembrance
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Quote:
What reason did your neuro give you for not wanting you to use the heating devices?
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. Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel Ruiz |
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#3 | |||
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Elder
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Cold does seem to increase spasticity…keep warm without getting overheated…are you on muscle relaxants such as baclofen or zanaflex? They help reduce spasms.
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#4 | |||
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Junior Member
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Yes, I take baclfen 15mg 3X day, I increased from 10mg when the cold started. Going to try to go back down to 10mg in the Spring.
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#5 | |||
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Junior Member
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Thanks everyone. In the cold it is my legs, hips, ankles that lock on me and make it near impossible to walk, my right worse than my left. I sort of slide my left foot because I can't lift it.
Sitting in the sun for too long on a hot day does make me more tired but my body moves better. I'm lucky to live in a very temperate place the summers rarely get above 75 F but there are 2 months in winter that can get down in to the 30's. We have had an very unusually cold winter so far. I makes walking my son to class each morning a real chore. It's an open hallway then add the fact that it's a slope and I almost fall everyday during the winter. |
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"Thanks for this!" says: | SallyC (01-15-2014) |
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#6 | |||
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In Remembrance
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I have always liked the Fall, Winter and Early Spring, the best. When I was a kid,
I enjoyed swimming weather, but that was then, this is now. ![]() me, I hate hate hate Summer (late June July, August and early September). Yes, The Winter outside is frightful and the fire inside's delightful, but, let it snow, let it snow, let it snow. ![]() ![]() ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#7 | |||
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Elder
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I have severe spasms as my main symptom…I was taking 20 mg of baclofen 4 times/day and the med would wear off way before the next dose was due.
My neuro broke it down a bit-I take about 90 mg per day, but low dose every 2 1/2 hours so that it's in my system more consistently. I still get the "ouch" before the next dose is due, but not as much. My neuro says that baclofen is a med that can be taken at high doses, but as he explained to DH and me, "I'd rather your legs were al dente then wet noodles"… ![]() I HATE the pain from spasms-it's making recuperation from knee replacement surgery so much more difficult, because my hamstrings and quads are so darn tight. I hope that maybe your doctor can level your dose of muscle relaxant to ease the intensity of the spasticity... ![]()
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#8 | |||
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Grand Magnate
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The cold had been making my spasticity much worse. The hug is getting tighter and tighter. I did not find baclofen to help me when I was at 60 mg per day. So now the only think I take for ms pain is clonazepam at bedtime. When I see new neuro (not supposed to have an appointment until June) I plan on seeing if he has any ideas on what might help. My old (now retired) neuro seemed to think that if 60 mg did not help then I was not responsive to baclofen.
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"Thanks for this!" says: | ker0pi (01-17-2014) |
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#9 | |||
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Junior Member
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He just asked my why I hate myself so much. It was the initial intake and diagnosis, we didn't get to go back to that. I'm still using my microwave heating pads and add extra clothes or blankets instead of space heater.
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"Thanks for this!" says: | SallyC (01-15-2014) |
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#10 | |||
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In Remembrance
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Sounds to me like you need a neuro who pays attention to what you say rather than making assumptions. I don't hate myself, I'm COLD!
__________________
. Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel Ruiz |
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