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-   -   Hi, have some questions... (https://www.neurotalk.org/multiple-sclerosis/200578-hi-questions.html)

DizzyLizzy 02-04-2014 01:40 PM

Thank you mrsD for posting that video.... I'm currently taking B Complex vitamins, but I don't know what my levels are? I will be on the 'hunt' now, thumbing thru my records. Thank you for this valuable info!

Snoopy 02-04-2014 03:48 PM

Quote:

Originally Posted by mimiRN (Post 1048786)
With my daily vitamin and D3, I should be getting 2000iu??

My Neurologist says not to count the D3 that is in a multivitamin.

Quote:

I just bought some d3 1000iu
If you want a total of 2000iu of D3 a day then you will need to take 2 of the 1000iu. If you want 3000iu of D3 a day then you will need to take 3 of the 1000iu.

It is a good idea to re-check your D level about every 6 months.

I have found D3, for me, is difficult to regulate. I started out with my D level @ 16. Started 5000iu and it took about a year and a half to bring my level up to 57.2. It was decided to bring my D3 amount down to 2000iu. Within 4 months my level dropped to 27.2. Upped my D3 to 4000iu and will be getting re-tested within a month.

mimiRN 02-04-2014 04:00 PM

My family doc had the lpn call with my results so I couldn't really ask any questions. She just said to take 1-2000iu...that's it! No retesting/follow up!?!

So I quick asked the Neuro why D was tested and briefly mentions demylenating diseases. I tried to ask him what the best dose etc, and he says, " your family doctor probably knows what to take". Ughh they didn't seem to concerned!

Snoopy 02-04-2014 04:15 PM

The majority of the general population, approximately 85(?) percent, has a vitamin D deficiency. Low vitamin D is being linked to many conditions not just MS.

I figured out pretty quick that even the medical profession isn't sure what the right dosage is. It appears to be trial and error.

Even if retesting was not mentioned please have your PCP recheck your D level in about 5 or 6 months

mimiRN 02-05-2014 05:11 PM

Thank you very much for the vitamin d help!

I have another question if you all don't mind. When you have our MRIs, do you get them all with contrast? My brain MRI is with and without contrast and my cervical and thoracic are just without. Thanks!

Erika 02-05-2014 10:02 PM

The brain ones are usually done with both for me; spinal sometimes also but not always.

With love, Erika


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