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05-25-2007, 09:04 PM
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#31 | |||
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Wise Elder
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Hi Kami! Welcome, to you. I'm a relative newbie myself and find this a lovely place to visit. I hope you'll stay. I'm in super slo-mo too, but like to see lots of input (mainly because I goof around a lot).
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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05-26-2007, 12:57 AM
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#32 | ||
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Member
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OK, I'm stayin' for sure!  Popcorn is what I lived on in college. Several of us in the dorm had those old-fashioned popcorn poppers, and around 10 pm someone was bound to go around knocking on doors "singing" the "Popcorn" song--the signal to come & get it!Pop-pop-pop-poppoppoppop, pop-pop-pop-poppoppoppop....! Nancy (oh, AfterMyNap, your name is my motto in life...) |
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05-26-2007, 08:35 AM
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#33 | |||
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Wise Elder
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What a coincidence! Mine too!  College was all "P" foods here too, Popcorn, Potatoes, Pasta, Pickins (leftovers from parents), Produce (day old), Premature Poultry (eggs)... My roommates and I consoled ourselves by coming up with a "P" word for almost everything. 
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom Last edited by AfterMyNap; 05-26-2007 at 09:58 AM. |
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05-26-2007, 09:15 AM
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#34 | |||
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Magnate
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As an aside...I got up at 9:00 a.m. and I am pretty sure it's time for a nap...
I had great plans for today, to haul a generator and a vacuum across a lake in a 15 foot aluminum boat to an island and get it up a 90 degree hill and vacuum up 90 years of mouse crap in the floor cracks upstairs. Then I saw AMN's name and thought better of my first plan...is there an emoticon for napping here?  I wonder if it's the Tysabri infusion or if I am just toast...sigh
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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05-26-2007, 10:08 AM
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#35 | |||
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Magnate
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I have days where I slowly drift from reading to the computer and back, with occasional trips to the bathroom and kitchen. I used to feel guilty about days like that, but no more. Now, I think my body sort of shuts down, or at least slows way down, and I have to go with the flow. BTW, today is definitely looking like that kind of day! 
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Mair . |
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05-26-2007, 10:08 AM
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#36 | |||
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Wise Elder
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I hear ya', RW. Has the Ty infusion been blamed for fatigue? I haven't heard it myself, but I'm no expert.
If it's any consolation, I think a lot of us do exactly that same thing on a daily basis. Many, many... well, maybe almost all... days, I have numorous things to do on my mind. I rarely get to it all. Ugh. For 10% of my former energy!
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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05-26-2007, 04:38 PM
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#37 | |||
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Elder
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Nap time. Yeah, fatigue is a side effect for some. At least the day of the infusion. Get used to it. Oh yeah, that reminds me, I have a questionnaire to send you for the FDA conference don't I?? Hmmm, guess I'd best be sending that out to you huh.... Wonder if anyone else here in interested in it...maybe I should ask. I will do that.
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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