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-   -   MS...and now, a Raynaud's syndrome DX?! (https://www.neurotalk.org/multiple-sclerosis/203075-ms-raynauds-syndrome-dx.html)

Lynn 04-14-2014 02:26 AM

1 Attachment(s)
This us an example of the 'line' I was talking about - it doesn't always happen, sometimes I just get white blotches on my hands, fingers and feet, sometimes the line goes across several fingers and might be down to the second joint, or even the whole finger. This pic was taken in low light, and I haven't done anything to enhance it - I was just glowing like a white beacon.

Erika 04-14-2014 06:25 AM

Yup, that sure looks like Raynaud's...and that's got to hurt! So sorry Lynn :hug:.

With love, Erika

SallyC 04-14-2014 10:38 AM

WOW Lyn, That is something:eek:.

:hug:

Lynn 04-16-2014 09:14 AM

It's weird when it happens this bad - as if I don't have enough trouble with numb fingers already :rolleyes:

I usually shake my hands a lot and run them under warm water and it comes back to normal - a nasty feeling though. I have never shown this to a doctor, perhaps I should - I doubt it would make any difference.

dmplaura 04-19-2014 10:01 PM

Quote:

Originally Posted by Lynn (Post 1063907)
It's weird when it happens this bad - as if I don't have enough trouble with numb fingers already :rolleyes:

I usually shake my hands a lot and run them under warm water and it comes back to normal - a nasty feeling though. I have never shown this to a doctor, perhaps I should - I doubt it would make any difference.

I'd still mention it to your doctor, just so they're aware.

They do have medications that you can take if it gets to be too much - for now, I'll deal with the kaleidoscope of colours I get with mine. Thank you for sharing the photo Lynn, that's a great photo (not great that you have the condition, but a fantastic example of it).

I wanted to post a photo of my feet from the pictures I took, but I will have to come back later with one, I seem to have "misplaced" them on my computer somewhere. :rolleyes: ... we all know how that goes. lol.

Plus, I'm not entirely sure how to post a picture without a URL, but I'll figure it out. :) :hug:

dmplaura 04-20-2014 12:03 AM

3 Attachment(s)
Okay, I think I got them figured out. The first 2 are the same foot, you can see the progression of the white areas returning to 'normal' skin colour.

The 3rd was the other foot, which was harder for me to get a photo of for whatever reason, the markings on it were quite unique looking.

Lynn 04-20-2014 01:54 AM

Wow - my feet go like that too - well similar anyhow. No fun at all!

dmplaura 04-20-2014 02:01 AM

Quote:

Originally Posted by Lynn (Post 1064824)
Wow - my feet go like that too - well similar anyhow. No fun at all!

No, not fun, especially when the blood flow starts to get back into those areas. Oh the ache. :(

My friend recommended these slippers she swears by (she has fibromyalgia and is constantly cold). They're down-filled and so light, as light as socks. They don't make my feet feel as though they're sweating, but when I take them off my feet are toasty warm.

Great investment for sure, as I understand with Raynaud's, keeping extremities warm is a big part of dealing with episodes. Now, to find something similar for my hands. ;)

Snoopy 04-21-2014 10:17 AM

Hi Laura,

Quote:

Originally Posted by dmplaura (Post 1062514)
Sorry to hear your daughter has Raynaud's. Does she have the disease or syndrome?

My daughter has Primary Raynaud's Phenomenon. She has medical documentation of symptoms (Toes/feet and fingers/hands) when she was in 6th grade. Unfortunately, that visit was with a Physicians Assistant who said 'no, it's not Raynaud's when I voiced my concern about Raynaud's.

It was quite sometime later that she saw her Primary Care Physician and he confirmed what I suspected, Raynaud's. She has not, to date, used any medication for her Raynaud's. She is now 22 years old.

With Raynaud's you do need to be very careful as you will be more prone to frost bite. Stress can also trigger Raynaud's to flare-up.

jprinz99 04-22-2014 10:11 AM

got it too! I like to freak out people on summer days with it :D

It can a diagnosis all unto itself or accompany another diagnosis. It does not always show up on blood tests either.

My DH just says I have cold feet, warm heart. I kind of like that positive spin on my blotchy, bright cold hands & feet (and sometimes even my fanny :eek:)


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