This is really confusing. I think I just found a contradictive article here:

https://www.facebook.com/notes/ccsvi...51429538792211

Note: I merely glanced at this article (don't have time to read it now), so hope I'm not wrong.

bit of advice...Stop googling. Trying to research MS stuff online can cause a lot of people a ton of stress.

If you're worried about what the MS *might* do to you someday. Try not to. Focus that energy on keeping active instead.

Sodium Lauryl Sulphate's a carcinogen?! I had NO idea! It's in toothpaste, that I do know, because I buy toothpaste without it at the suggestion of other folks who have burning mouth syndrome. Eeessssh. The stuff these companies put into products we use for whatever reasons... why why why?! I don't know who this "Dr. Mercola" is, but those websites look almost spammy. I wouldn't put all your chips into the information there, just saying.

Edit: I have a large amount of lesions, and my last MRI shows I have 2 active - one's a repeat, one's new. I don't (personally) believe in the DMDs, or other "therapies" for M.S. LDN may be a good option though. I have to echo the "carpshoot" sentiment.

I'm 37 and feel like I'm 30 some days, others I feel like I'm 65. I agree with what Erin says, stop Googling. Have good, open communication and discussions with your specialists and doctors. Tell them how you feel. Your worries, fears, ... that you're concerned you'd been stable, and now you're noticing certain symptoms.

Hugs <3

when I was still being diagnosed, I drove myself absolutely insane with all the googling. Even now, I tend to over-google symptoms. Trying to figure out what's going to happen with the MS.

Hopefully I've been able to force myself to stop. It just makes me more and more nervous about what's going on.

A couple of decades ago, Dr. Mercola (a naturopath), introduced the general public to natural remedies and preventative health care strategies. With the passing of time, he has become more of a marketing promoter; especially for supplements that he has a vested interest in.

If you did everything and took all the supplements that Dr. Mercola suggests, you would have a full time job just procuring and swallowing all the capsules, teas and other supplemental supports...and would be broke in short order.

Eat well, exercise, listen to your body and mind...and live a happy life.

With love, Erika

Me, too. Fear can do more harm to you, physically as well as mentally, than any disease can do.

When I was waiting for my diagnosis I googled everything I could find and got just as many diagnosis'. It was maddening! I had eventually self-diagnosed myself with a brain tumor so you can imagine my relief when the doctor said "MS"! He was a little taken aback at my relieved reaction but understood once I explained to him what I thought I had. :o

Laura gave you some good advice. Talk to your doctor and let him know your feelings. Make sure your doctor is a good fit for you....not all doctors are.

Google wasn't around (or at least it was, but not in my home or even in my knowledge-sphere when I got Dx'd in 2001 - I think I had heard of it, but it was a world away from me).

Still, there was lots of media-hype about motor neurone disorder at that time, so when I started slurring my words, going numb, losing my vision, pee-ing myself and tripping all over everything I was terrified and thought 'this is it'. I was only thirty-two and had two small children.

My diagnosis ended up being such a relief, although I was convinced, with everything I read and saw (and later Googled - because my computer ignorance didn't last long: I had a physical job back then and had to 'reinvent myself' and do something less demanding) that I was primary progressive.

Time told the story and I re-trained, became a teacher (in my industry, teaching business and retail to adults) - I have done this for ten years, and so far - touch wood, I have not progressed too badly.

Knowledge IS power, but sometimes, it is debilitating - you just need to be careful that you don't make it a 'self-fulfilling prophecy'.

Just my humble thoughts

xx

Thanks for all the replies. I'm taking LDN for the first time tonight. I'm eager to see what happens.

It is CRAZY what companies will put in your food as well as vitamins/drugs. More often than you realize, they are putting toxic chemicals into your food here in the US. Chemicals that are actually BANNED in other countries!!

Please google "foodbabe" and check out her website. This girl "Vani Hari" is my hero, she is fantastic! Subway was, and is probably still is, putting a toxic cancer causing carcinogen called "azodicarbonamide" into their bread!!! The same chemical used to make yoga mats! This girl has been featured on CNN, USA Today, The New York Times, Dr Oz Show, The Washington Times... this is girl taking on huge food companies and corporations (such as Monsanto and their dangerous GMOs) head on!! Check her out.

Biogen is no exception, their drugs have certain added chemicals that are NOT of any benefit to the patient. It's always about money money money and more money. The more they can increase their margins the better and screw the people!!!! I am not a fan of big pharmas.

It is not surprise why cancer is on the rise. The amount of cancers we are seeing today is just NOT normal. I confess I am super paranoid about getting cancer and don't appreciate these jerks putting more unnecessary added carinogens into my food and drugs!!! I no longer eat any processed foods.

Good luck with that!


Crapshoot, good description.


Yep, you're screwed. :rolleyes: We should all be so screwed. I only have a few lesions and can hike in the woods for an hour and barely crawl home.


For every article/study, there is an equal and opposite article/study.


Lilly, if you start going downhill tomorrow, I suspect you'll blame it on your lesions. Some of us might think to ourselves that you Googled yourself into a tizzy. You seem to be quite focused on something bad that may or may not happen. How about centering on what you can do and control? A lot of us only dream about running, much less 3 miles a day. You have a lot going for you; try thinking about that.


Again, good luck with that! And when I say "luck", I mean luck.

I know I have to relax and stop googling myself into insanity. It is just shocking to me how I went from one tiny little lesion to well over a dozen within just 6 yrs time. My MS has progressed severely is what every neuro I have seem thus far keep telling me (I've even seen the top neuro at johns hopkins in baltimore and the neuro who "trained" with him in Miami).

I am SUPER thankful I am doing so well and able to be active as if I were normal without this *** disease. It did attack my legs once and I was unable to run for 3 weeks (even affected my walking), it sucked!! I know many others aren't so lucky to resume as normal, I can't help but feel doomed... like "it's only a matter of time". When I was on tybsabri, the infusion room was more than depressing. I have never seen so many people in wheel chairs before and they all had MS. Difficult to stay optimistic!

You guys should checkout the "foodbabe". I think that girl is fantastic. It is incredible how much she's made a difference. Big hats off to her :)

PS: I agree that MS drugs are indeed a crapshoot.