[LillyMS]

I just stopped taking MS drugs this Monday to give LDN a shot for 6 months. I am really concerned I might have made the wrong decision and being foolish? If anyone here takes only LDN for their MS and NO other MS drugs, PLEASE post here and let me know and how you are doing on it in regards to progression and MRI scans?

I would be incredibly grateful for feedback on this. Thanks.

I know my neuro would tell me I am CRAZY and give me a huge lecture, but I am not willing to go back onto toxic MS drugs at this time. I have tried avonex (did not work at all), tysabri (did work but I am JC+) and then tecfidera (gave me horrible side effects and leukopenia!!! ... and very concerned about increase of cancer risk).

[SallyC]

ME!! Good Luck..

[Erika]

I take LDN and some other meds for symptom control, but none of them are the DMDs. My MRIs sometimes show new lesions but some lesions have faded. Bear in mind that what shows up on MRI does not always correlate with symptoms.
Good luck from me too.

With love, Erika

[marion06095]

I only take LDN for my MS. I am in the progressive stage of the disease, so there isn't a whole lot that medication can do for me.

[LillyMS]

Thanks for responses. I guess I just have to calm down and take an MRI 6 months from now, but can't help thinking in back of my mind I could be doing something very foolish (have no idea). I was almost thinking of doing MRI 4 months from now but that is probably too soon you think? Since I just had one 2 weeks ago.

I don't plan to see a neuro again until I've had this MRI because I know if I see my old neuro (which I haven't seen in many years), that I will be lectured and told I'm foolish for stopping MS drugs and using only LDN... or at least I am 99% certain this would be the case. Even though this neuro does prescribe LDN... at least that is what the rep at front desk told me.

I saw an MD yesterday and was really hoping he would tell me (very rough estimate) how many people he's dealt with MS who he prescribed LDN to who are not on any MS drugs, but he totally refused to answer the question! This makes me realize he more than likely didn't want to answer because the number was really low and he didn't want to seem inexperienced. I cannot think of any other reason. He wouldn't even give me rough general estimate as to the number of people with MS he prescribed LDN (regardless of them being or not being on MS drugs), this is bad and a red flag.

[LillyMS]

Whoops, sorry to double post. I keep forgetting to subscribe to the thread and I can't see how else to subscribe without reposting? thanks

[Charlie2015]

Hello

I am in the process of being diagnosed with MS.. Hoping that it's something else but either way I started to look into foods that would decrease the symptoms. I stopped eating gluten & dairy and so far i've seen a positive change in my fatigue symptoms. Also, every time I eat a minuscule amount of dairy or dairy containing products, I get a sense of tingling in my hands.. Thought i'd share with you guys.

I'm looking into Dr. Terry Wahl's diet.. Apparently it does wonders from the testimonials I read.. Anyone tried it here?

[LillyMS]

Diet plays a HUGE role in MS and other disease as well, and of course... general wellbeing and health! have you looked into Dr Roy Swank's diet and the long study he conuducted? I wish he were still alive. he was a fastastic neuro. Also, Dr John McDougall recently conducted a study very similar to Dr Swank's.... results will be published soon.

I am a vegan. I consume only organic foods to avoid pesticides and GMO. My diet consists of fruits, veges, nuts and seeds. I NEVER eat any processed foods. I get blood checked every 6 months for b12, vitamin D etc. The sad truth is that meat eaters are just as likely to be b12 deficient as vegans. I LOVE the way I eat. It tastes great and is super healthy too!

More than anything, my biggest regret is not eating this way years ago. 5 months ago, after I learned what Monsanto is doing to the food in the US and Canada with their unsafe GMOs and dumping more and more pesticides which is now in the air, soil and water I drink!... I completely turned into a health nut. I was so infuriated by what is allowed to happen in this country, I started researching on ways I could turn food into medicine and eat for optimal health. Nothing aggravates me more than when I read such silly comment claiming "diet is just a placebo effect in MS". That is absurd and not so.

Google "foodbabe". This woman who started that site is amazing. She is taking on huge food companies and corporations head on. Chemicals that are BANNED around the world are being put into peoples food here in America. It is DISGUSTING. Take subway for example, they were placing carcinogens "Azodicarbonamide" (chemicals that cause cancer) into their bread. Chemicals in so many foods (even vitamins!) here in America (many chermicals that are banned everywhere else) ... it is just mind blowing. If this doesn't infuriate you... then I don't know what else to say. No wonder why cancer is epidemic and diseases are skyrocketing.

[Erin524]

Originally Posted by LillyMS

Whoops, sorry to double post. I keep forgetting to subscribe to the thread and I can't see how else to subscribe without reposting? thanks

Look at your first post in the thread. On the right, it says "Thread Tools". Click on that, there's be a drop down menu that will have the option to subscribe to the thread.