NeuroTalk Support Groups - Gloom, despair, and agony on me…...

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- - Gloom, despair, and agony on me…... (https://www.neurotalk.org/multiple-sclerosis/205225-gloom-despair-agony.html)

Msarkie, have you had any heart testing. Angina can be any pain above the waist and it is pretty difficult to diagnose in women because often they don't have the typical angina type pain.

Your avatar name reminds me of malarky because that's what MS can be at times, a bunch of malarky

maybe you need a referral to an orthoped"ist". no pun intended.
it sounds like you have very ligitimate problems that should be considered and evaluated seriously.

i hope you find a specialist willing to help you.
i have an orthopedic dr who is very good.

please let us know how you are.

MsMarkie I was just yelling at a dr the other day when he asked me "is it from your MS or something else?" I said "isn't it your job to find that out?" So sorry you are in so much pain. I hope that you find relief and a good dr. Both are elusive for us I know. And the isolation that comes with a flare up or call-it-what-you-may only serves to isolate, depress and magnify the issue. So its great that you reach out and connect. here, email, telephone... take good care of yourself.
janet

Quote:

Originally Posted by msarkie (Post 1073511)

Sorry if I bring you down, I just have too many things bothering me right now and I don't know what to do. I don't know what is MS anymore, what is possibly rheumatoid arthritis, and then I have all these miserable digestive issues.

Right now I'm losing my mind over this PAIN between my right shoulder blade and my spine. It effects almost the whole upper right part of my body, and I can't get a good breath. I've basically been in bed for about 3 weeks now. I've tried massage, chiropractic, ice, moist heat, stretches; I went to the GP and got a steroid shot and some Nucynta; I've used Flector patches and Volterran gel and Tiger Balm. Nothing works for long.

And it's not just pain - I'm visibly malformed too. My mid-back is swollen on the right side and my collarbones are uneven.

I'm debating just trying to go to Mayo or to Kansas City to an MS specialist, somewhere they have several different specialists working together. I need a neurologist, rheumatologist, gastroenterologist, dermatologist, and lots of other -ists. Has anyone been to Mayo for treatment/diagnosis? If so, who did you see, and did you like them? There is a lot of MS research in the Kansas City area, which is about 4 hours away from me, but I don't know if they have the multi-disciplinary clinics.

There just aren't many good neuros in this area, not for MS. If there is a good one, they are so overbooked it's impossible to get in. I almost ended up going to the hospital yesterday just because I couldn't take it anymore, but I would have had to call an ambulance and I just couldn't face running up that kind of bill.

Thoughts?

Thanks for all the responses! It's been slightly better the last couple of days, but I'm having to take pain pills (Nucynta) pretty regular. I really am seriously thinking about calling up Mayo Clinic. They don't require physician referrals.

Other than the back/shoulder pain, another thing that is driving me nuts is that I have a chronic staph infection on my face. Just when I get it cleared up in one spot, it pops up again a few inches away. I've been to the dermatologist and have prescription medicine, but it still won't clear up.

You can name any body system - digestive, nervous, etc., - and I guarantee I have something wrong with it. I just feel like seeing different drs and specialists piecemeal like I have been is getting me anywhere.

Oops, getting me nowhere, I mean.

it sounds like your pcp is letting you down.
maybe mayo is a good idea. since you have a lot going on you need a dr to listen, validate and evaluate for you. a good primary dr should coordinate your care even if you need to see a lot of specialists.

i hope you get some relief.

:circlelove: ((((((msarkie)))))) :circlelove:

My new thing today is my joints are itching! The insides of my elbows, and my finger joints, and my knees.

WTH?!

And of course, every day my DH comes home from work and wants to have sex. What are you gonna do?

Quote:

Originally Posted by msarkie (Post 1074149)

And of course, every day my DH comes home from work and wants to have sex. What are you gonna do?

Everybody has an itch..:D:p:D