I'm still in limbo and would really like an answer ... just so I could have a plan of some sort. I suspect I will be relieved -- actually, after the ups and downs and all the things that have been implied, then un-implied -- well, I suspect I won't believe him initially if it comes to an actual dx :rolleyes:.

I'm going to say congratulations on your dx because I know intimately how crazy limbo is. Having said that ... it's a journey on both sides of the diagnosis.

Be well.

When I was diagnosed I felt sick... and scared... and powerless....and relieved....all at the same time.

I cant describe it properly, but knowing I wasn't just a hypochondriac, and knowing that the beast had a name was somehow liberating. Like the hypochondriac who writes 'see I told you I was sick' on their headstone, that validation was so very important to me.

It didn't stop me from feeling scared and lonely and devastated though. Remember this was thirteen years ago, and the treatments, information and outlook has improved a lot since then.

it's good that you are no longer in limbo - I was fortunate enough not to have much of that - but what there was, was awful. our dx is not a reason to celebrate but there are so many worse things out there that you (and I) could have.

I just remember being relieved that I didn't have a Brain tumor.:eek:.
Especially since the Neuro who DXed me was a reknown Brain Surgeon.

I'm glad to hear you finally have a name to your symptoms. I totally understand the relief of now knowing what it is that you are dealing with. It's kind of bittersweet in a sense. So, welcome to the club. :hug:

Congrats! I am just entering this world of MS. I do not have the diagnosis yet but I had no idea that some thing was wrong until I started having double vision. (one eye covered) After two eye exams and a referral to a neurologist/eye dr. Who ordered an MRI (last week)
I couldn't imagine a doctor not taking my symptoms seriously.
I have another autoimmune disease so I think some of it blends in like the fatigue and pain. so we will see. I do not like that I am waiting 2 weeks to go over the mri report that clearly states lesions and suspect for early MS.

I was honestly convinced for a while that I had Motor Neurones when I started slurring and tripping over myself before I had my first 'major' attasck- imagine my relief!

As I said...bad but could be so much worse

Hi Summer, welcome home..:hug:

I too was thrilled to hear "It's MS" from my neurologist. I had worked it up in my mind to be something much, much worse. (Not that MS is a walk in the park, I was relieved to finally have answers too to explain what was going on with my body, as many had, by that point, labelled me a hypochondriac.)

I was relieved too. For several years I'd been thinking it might be a brain tumor or a spinal tumor. Or maybe just stress, but if it was stress, why weren't the symptoms going away when the stress eased up?

So it was settled--it was "just" MS. A weird demyelinating disease that happens to some people for no known reason.

Happy Diagnosis!
 

It's not weird, I think anyone with neuro symptoms understands what you said.

I'm 2 years now with numbness, tingling, pins and needles, random sharp pains, muscle spasms, gripping pain, limp, occasional slurring, hives, space walking, sea sickness on land, incontinence, occasional space cadet, muscle twitching orchestra, severe fatigue and swallowing difficulties.All happened within two years.

I went from playing tennis and travelling to What The Fudge happened to my body?

We get dismissed by sooo many Drs that we start thinking we are going mental.
Drs tell you it's stress or normal. I've been "normal" for over 30 years. I KNOW what "normal" is for my body :p

I have a brain lesion and am having final spine MRI in a few weeks. My Neuro said this will probably be the last test I need for diagnosis because I have so many symptoms.

I am sorry you have a horrid disease but I'm happy for you that you've been diagnosed and can start treatment :)