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Old 02-17-2015, 06:38 PM   #31
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Default awaiting a dx

Hello everyone, I'm new to this. I am 42 year old female. Started falling down a lot in October 14. Doctor noticed drop foot and sent me to Neuro. Had an MRI of brain and showed multiple lesions. Then cervical MRI showed a couple small bulging discs but no lesions. Plan was to recheck in 6 months. Then in January I woke up not being able to feel or control my right leg. 4 hours in the ER to be told I didn't have a stroke. Then dragged my leg behind me for a couple of days til I got a brace. Back to Neuro, LP, came back ok. Now scheduled for 2 more MRI of spine. Still needing brace and a cane to get around. Very fatigued.

My family is not supportive at all. They say things like, don't think about it and you'll be fine, what to you have to be stressed out about, you need to stop having these tests done you're going into debt over what, other people have MS and still work, why can't you.

Hoping for answers soon
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Old 02-17-2015, 08:51 PM   #32
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Location: SW Ohio
Posts: 17,844
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Welcome Tock. . Your Family is doing what a lot of Fam members do, at first.
Go into a state of Denial. If I were you, I'd go with them, until. you find out
differently, or untill your symptoms can no longer be denied.

Happy to have you aboard. Complain to us, we understand.
~Love, Sally

"The best way out is always through". Robert Frost

~If The World Didn't Suck, We Would All Fall Off~
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Old 02-18-2015, 07:56 PM   #33
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Default Suprapubic Catheter

Hi , Rae,

I've had PPMS for 20+ years and I've had experience many of the suggested treatments and assistive devices available.

I've had a suprapubic catheter for over 4 years. I would be happy to answer your questions regarding it or regarding other issues with which II have experience.


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Old 04-19-2015, 11:46 AM   #34
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I was famous for having 1,500 posts on MSWorld, then requesting my account be deleted entirely when I had an argument with admin over the PM option being removed.



32/M/Australia =) DX Oct 2004, had since I was 15-17.
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SallyC (04-19-2015)
Old 03-14-2016, 05:10 PM   #35
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Default Old info.

Just wondering why there aren't many recent posts related to MS. If I click "New Posts" there are several pages of new posts but none seem to address MS or DBS.
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Old 03-14-2016, 05:20 PM   #36
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Hi Karen,

At the top of this forum are a number of what we call "Sticky" threads. Below those is the main forum.

You could start a new thread perhaps and explain your situation and the information you're looking for in that. I left you a message on the Movement Disorders Forum with a link to the FAQ as well. That might help you with navigating. If you need more help please let us know.

Start new thread if you want by clicking on the link below -


The "New Posts" button will only show you the latest posts on all forums.

If you want to search for something specific to MS then use the Forum Search Feature and when that's open, scroll down to where it says "Search in Forum/s" and check the Multiple Sclerosis Forum box.

Searching Forums & Threads
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Old 06-04-2017, 04:38 PM   #37
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Location: Goldsboro, NC
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Default Best fit here

I have just been diagnosed with white matter disorder, which is akin to MS, so I am posting here.

I am 62 and have incontinence, trouble walking/stumbling, muscle twitches, and memory and thinking problems.

Hello to you all!
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Old 06-12-2019, 04:47 AM   #38
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Posts: 2

Hi there,

Im a female in my early 20s whos been partially diagnosed with MS. Still awaiting my formal declaration I guess. Everything has been recent, it first started a week ago when I got sharp pains in my eye. My vision has been affected and Im really hoping I can get some treatment soon so that I dont losome sight.
Hoping to learn from here so that I can better take care of myself.
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