[summerjc07]

Symptoms - Double vision in each eye but only when one eye is covered - right eye a lot worse than left.
Dull headaches in forehead and stiff neck that last forever - with major fatigue.
Only other medical issue is Hashimotos Thyroiditis.
(simplified)
No orbital abnormalities. No mass or fluid. Muscles normal. axial imagine from the skull base to vertex postgadolinium and no abnormal enhancement is noted at any level. Optic chiasm normal - no infarction at any level. no blood products or fluid collection.

Flair images - along the right and left periatrial areas, there is some faint T2 prolongation along the adjacent deep white matter. This is the marginal to the splenium of the corpus callosum. The findings overall and nonspecific but given the age of 29 and double vision - the possibility of an early demyelination process would be a differential consideration.

Is the patient suspect for early multiple sclerosis.


*** So I imagine I will be going through more tests to rule out lupus and some other things to see if I fit in MS or not. So a clinical correlation is required.
I also have had another symptom that I didn't think was anything that might be something if it is MS.
When I stretch my legs and my toes. All of my toes spasm and contort on their own and I have to wait for them to relax and go back to normal. Usually takes a few seconds to a min. And difficulty getting words out like I am developing a stutter but I thought it was from being out of practice and being a stay at home mom. lol. I tend to seclude myself.
So we shall see. I wont see the doctor until the 5th.

couple of questions
What is the definition for faint prolongation - does this mean lesion?
What can I expect at the follow up?

And with double vision in both eyes but only if one eye is covered does that impact my ability to drive or anything?

[Snoopy]

I believe it would be important for you to understand what double vision is. The proper name is diplopia. There are two different types of Diplopia, monocular or binocular.

In monocular diplopia, the double vision is caused by a condition within one or both eyes and does not resolve when one eye is covered.

In binocular diplopia, the eyes are misaligned. Each eye sees a single image when working alone, as when one eye is covered, but when both eyes are open the brain perceives two adjacent images

http://www.medicinenet.com/double_vi..._double_vision

What you appear to be describing is binocular.

There can be different causes for Diplopia (Thyroid Disease, Multiple Sclerosis, Myasthenia gravis, eye muscle problems, lens problems, and more)
http://www.webmd.com/eye-health/doub...osis-treatment

Obviously there are many issues to consider when dealing with a symptom such as Diplopia. Hopefully, your Drs. will be able to sort it all out soon.

Take care.

[summerjc07]

Yes, we have ruled out anything to do with the eyes themselves. It is binocular but affects both eyes. I do not see double when the eyes are being used together.

[SallyC]

couple of questions:
What is the definition for faint prolongation - does this mean lesion?
What can I expect at the follow up

Yes, faint prolongation could mean a lesion?

The follow up, if MS DX, will most likely be about early treatment with one
of the MS modifying drugs and possible symptom management?

Hang tight and let us know how it goes. We will be here to support
you.

[summerjc07]

Originally Posted by SallyC

Yes, faint prolongation could mean a lesion?

The follow up, if MS DX, will most likely be about early treatment with one
of the MS modifying drugs and possible symptom management?

Hang tight and let us know how it goes. We will be here to support
you.

Thank you. I started a journal and started writing about some other stuff I haven't really thought anything about like cramps in my toes that make them contort out to the side and it takes a min to go back and un-cramp.
and anxiety and depression that have taken a turn for the worse.

It all started after training for my first 5k with leg pain like I have never felt and ankle stiffness that prevents me from walking normally every morning until I walk them out - they loosen after about an hour every morning.

It has even made me question something that happened years ago where I had a sudden headache and had burning and tingling in my forehead that spread to the top of my head before fading. It was chalked up to a panic attack and I was put on lithium with out any testing. (no longer on lithium that dr. was a quack)

So right now we know there is some changes in deep white matter in my brain. And the MRI specialist recommends MS correlation.
So its document document document everything.

[NurseNancy]

hi and welcome to NT,

you've gotten some great advice.
write down your sx's (symptoms) for your next dr visit. try to keep things clear and concise. the dr may not listen if you throw too much at him.

however, write down your Q's as you think of them. try to bring a friend or family member with you to the appt as a 2nd set of ears.

it is a bit of a process to eliminate things that could mimic MS and to also make the dx (diagnosis). try to take 1 thing and test at a time. having all this info thrown at you can of course cause anxiety and/or depression. please share this with your pcp if you think it's lasting too long.

we're here for you. keep us posted.

[Starznight]

I'm glad your doctor listened to the monocular diplopia, mine said that since it was in both eyes, no problem it was only an issue if I only had monocular diplopia in one eye. But if it was in the left and the right I was fine. It didn't sound right to me, but...

[summerjc07]

Originally Posted by Starznight

I'm glad your doctor listened to the monocular diplopia, mine said that since it was in both eyes, no problem it was only an issue if I only had monocular diplopia in one eye. But if it was in the left and the right I was fine. It didn't sound right to me, but...

It kept getting put in the system as binocular and not monocular. So when I saw the neuro he asked me if covering one eye helped I had to take a breath and make it clear I only see double when one eye is covered. Lol. He was like oh...

[cedarsleeping]

I am also in limbo and also just joined here ... have had binocular double vision since April which earned me a trip to a neuro opthamologist.

But each eye individually is fine. I guess that is why I was referred quickly?

IN order to see, I have to cover one eye. I now have temporary prisms in two sets of glasses to help me see the computer, or to read.

Summer, I kept my notes in journal style, but my dx process has been going on forever. (Yes, I am exaggerating! -- just feels like forever) Eventually I summarized my history on a timeline, which I took to my last neurologist appointment. My neuro loved it and actually wrote all his notes on it.

Not everything was on it. My "everything" makes my neuro's eyes glaze over and reduces him to a catatonic state . It helped him see that although I have a lot going on, there are definite periods of relapse and remission for individual symptoms. They do sometimes overlap.

Just an idea as you keep your notes .

Have you had bloodwork done? I was low in vitamin D and magnesium -- since I started supplementing magnesium in particular I've had much less trouble with the cramping in my feet and toes, and hardly any cramping in my calves. These would be good tests to do.

I also have periods of time where it is difficult to speak; also word-finding, etc.

This process is long, and I'm happy you've found a place to go to for support. No one in real life gets it .

[summerjc07]

The time line is a good idea. Yeah I think my notes would make any dr.'s eyes glaze over. I started a simplified question sheet because I am sure the dr will answer those with out asking so I have a check list. I think binocular is worse. :/ But I am glad some of the prisming is helpful for you!
I keep lights turned off which helps with the head aches behind my eyes and forehead. Pain meds help but I don't want to get used to taking too much on a daily basis. It would be nice if this as some thing that could be diagnosed quickly :/ But I suppose I could learn some more patience.... haha
I am most afraid of being told I am not allowed to drive. I honestly just don't know how I would manage my daughter starting prek next week and not being able to take her. My mom would demand her school be changed if she had to drive her for me. :/ But no one has mentioned it so I am trying to be positive. I would not get behind the wheel if my eyes didn't seem to work better together. Reading signs seem to be my only issue.

Originally Posted by cedarsleeping

I am also in limbo and also just joined here ... have had binocular double vision since April which earned me a trip to a neuro opthamologist.

But each eye individually is fine. I guess that is why I was referred quickly?

IN order to see, I have to cover one eye. I now have temporary prisms in two sets of glasses to help me see the computer, or to read.

Summer, I kept my notes in journal style, but my dx process has been going on forever. (Yes, I am exaggerating! -- just feels like forever) Eventually I summarized my history on a timeline, which I took to my last neurologist appointment. My neuro loved it and actually wrote all his notes on it.

Not everything was on it. My "everything" makes my neuro's eyes glaze over and reduces him to a catatonic state . It helped him see that although I have a lot going on, there are definite periods of relapse and remission for individual symptoms. They do sometimes overlap.

Just an idea as you keep your notes .

Have you had bloodwork done? I was low in vitamin D and magnesium -- since I started supplementing magnesium in particular I've had much less trouble with the cramping in my feet and toes, and hardly any cramping in my calves. These would be good tests to do.

I also have periods of time where it is difficult to speak; also word-finding, etc.

This process is long, and I'm happy you've found a place to go to for support. No one in real life gets it .