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-   -   does anyone with MS have the fallowing sensory symptom? (https://www.neurotalk.org/multiple-sclerosis/207834-ms-fallowing-sensory-symptom.html)

Synnove 08-10-2014 04:31 PM

Thanks, Snoopy.

Yes, I agree with you and understand.

You see, I feel that once I just get told, and know for sure what these symptoms are, I would be able to adjust to it, and understand.

And I am able to realize, just like you, that these symptoms/feelings are just sensory symptoms/feelings, and they will not hurt me, it is just nerve cells misinterpreting things and sending wrong signals, to say it simple.

But until then, these symptoms can be sort of scary. I used to think at first that it would have to be some sort of systemic inflammation.
But blood tests and Spinal tap has been negative.

Hopefully, I will have answer soon.


thanks again

Snoopy 08-10-2014 04:56 PM

Quote:

Originally Posted by Synnove (Post 1088441)
But until then, these symptoms can be sort of scary.

Of course it would be scary :hug:

Believe it or not I have not always been so calm about my body vibrating and buzzing, :eek: :)

Take care.

Synnove 08-10-2014 05:22 PM

Snoopy,
The reason my diagnostic tests are on hold for a little while, is :

I was having some serious acute transient vision failure some months ago.
I ended up having to have a Temporary Artery Biopsy. { was negative for Temporal Artiritis) But ophthalmologist found large fast-growing cataracts, ( probably due to Prednisone use.)
It was very strange that it should be Transient if it was only cataracts.

My neurologist wants to wait until I have had cataracts surgery completed. Then he can evaluate my vision together with eye doctor. If any further problems, at least we can rule out cataracts being the cause.
I have had one eye done, awaiting the second one next week.

I will then have MRI and Evoked Potentials as well.
I will ask my neurologist to reconsult the MS doctor.
THE REASON I WAS STARTING THIS THREAD, WAS THAT THIS DESCRIBED SYMPTOM SEEMS TO BE VERY REAR, BECAUSE DOCTORS I HAVE SEEN DO NOT SEEM TO UNDERSTAND. AND IT IS A VERY DIFFICULT SYMPTOM OR SENSATION TO EXPLAIN.
It was really good to hear that others have what seems to be the same sensation. And I was interested to know if you all had been told by doctors that it was from MS. Because I have not seen it mentioned in connection with any other diagnosis. ( Except for the neuropathy doctor said to me that " you will have all kinds of strange symptoms with autonomic and small fiber neuropathy)
I thank you all for inputs. You have all explained it the same way as I am feeling it.

Ohh the vibration and the buzzing is making me crasy!!
It is different from all the pins and needles, burning electrical current up and down arms and leg and the numbness and the cramps and weakness of arms/hands on and off, And the "heavyness" of legs as if there were a tight rubber band around my knees. I know much of this is due to the neuropathy,
I have not heard anyone with neuropathy say that they have vibration in the inner tissue

SallyC 08-10-2014 06:31 PM

Hang in there Synnove..:hug:
Hope thing settle down for you soon.

Synnove 08-12-2014 08:27 PM

Thank you Sally C

for your caring always,

Synnove:)

TXBatman 08-14-2014 12:35 PM

I get that sensation in my lower legs and feet after hard workouts or long hard bike rides. I usually feel it when I sit down and take my shoes off. When I put my feet back on the floor, it feels like the floor is vibrating. I described it to my wife as feeling like I am standing on concrete next to a large truck that is idling or like standing on a concrete slab next to an air conditioning unit that is running.

msarkie 08-15-2014 12:41 PM

Yes, I get that sensation especially when I'm having a relapse or pseudoflare. I also get what I call itchy and twitchy, or itchy insomnia. It seems kind of related to restless leg syndrome. Like it's worse when I lay down and try to relax. I'll be starting to doze off, and my whole body will jerk and startle, and then I'll lay there and twitch here, there, and everywhere, with random itches thrown in for good measure.

Nerve diseases are nuts!

BBS1951 09-09-2014 06:20 PM

I sometimes get that vibration feeling. I ignore it. Our bodies are like an amusement park with all these weird things!


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