Thanks for the Update BD. Glad you have your DX and the proper
Meds to fight it. Stay well and come back often.

You might want to try some kind of alternative medicine - acupuncture, naturopathy - I've just about lost faith in traditional medicine. I've had some good results from non-mainstream "doctors", and at least you feel like SOMETHING is getting accomplished besides just sitting around waiting to get worse so some M.D. can sign off on an official diagnosis of something.

Sorry if I'm not making sense, I'm on pain meds from the "regular doctor" who is seemingly trying to kill me right now.

Thank you, msarkie. My primary care provider currently is trying Cymbalta. It has actually helped my migraines some, my anxiety, and seems to be helping my muscle pain a little so far.

I refuse to take pain pills, they never work for me and only serve to cause my migraines to rebound, so why bother. I have tried a few alternative medicine avenues (Chiropractic, massage, accupressure) none worked and massage and accupressure were the methods I thought were going to kill me, they were extremely painful for me. If Cymbalta doesn't work or I build a tolerance to it, then we will try another, but my PCP knows how I feel about pain pills. We have worked together in the past as professionals (I was a pharmacy technician) and he understands that I have multiple drug allergies as well, we have to be careful.

Hi bddouglas

Is your PCP diagnosing Fibromyalgia based on Cymbalta helping your pain?

Although I am very happy that you have found relief from your symptoms with Cymbalta that alone might not indicate Fibromyalgia. Cymbalta was first FDA approved to help with Diabetic nerve pain. Cymbalta has also been used off label to help with neuropathic pain associated with MS.

Cymbalta is also used to treat anxiety and depression.

Again, I am very happy you have found relief from your symptoms

Well, further checking and I see Cymbalta is now also a treatment for Fibromyalgia :-)

Thank you for your response, Snoopy.

No, my primary care provider ordered a couple of more panels that were more accurate than my neuro had ordered for RA and Lupus. I have had so many tests, scans, dopplers all since March. Cranial blood pressure, carotids have been checked, Evoked Response Potentials-Visual, EEG, LP, MRI's (brain, cervical, thoracic), all the different blood work including fasting glucose and a1c...nothing out of the ordinary.

My chronic migraines, all over body pain (feels like it is in the tendons and right up against the bones), and the cognitive and memory issues and the fatigue, balance, anxiety all led him to this diagnosis. I also have early cataracts and corneal edema causing visual issues.

I still have to have a brain MRI every year for the next 5 years. To follow up on the spots on the MRI done in March.

I have a feeling that I have not reached the end of this road yet. I think this has only been a short leg of this journey and I fully intend to remain proactive. My primary care is proactive and intends to help lower my pain level, without controlled pain killers (I refuse to take them due to rebound migraines),

Y'all have been so wonderful and supportive through this journey and I want each of you to know that I truly appreciate you. I have posted on the FM board and I have not heard a word from anyone. I guess I may have to shake some people to life over there...LOL

You are always welcome to continue posting on the MS forum