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Old 09-29-2014, 03:01 PM #1
summerjc07 summerjc07 is offline
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Default Brain Lesions only- no spinal ones

I have had a brain and spinal mri, lp, blood work.

Everything is normal except the brain MRI. 4 lesions that have caused double vision and head aches. No lyme and no lupus. So that is good. no other antibodies or anything.

So I have a redo for both MRI's in a few months.

So we shall see what is to come. Right now I am going to focus on other things and live a little.

I am guessing the double vision is permanent??? I never goes away and is very blurry and unfortunately is making me change some college plans. I can't go to school for diagnostics sonography if I can't see the screen lol.
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Old 09-30-2014, 07:43 AM #2
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Hello there

Great news about not having spinal lesions - they seem to be the ones that wreak the most havoc.

Having said that, it doesn't diminish the problems caused by brain lesions. It took a very long time for my vision to clear, and 13 years later, when I look to my left I have double vision - but within a year I had improved amazingly - for the first few months I had double vision all the time. My point is, it took its time but it did get heaps better. So might yours.

I hope it does for you too.

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Old 09-30-2014, 08:49 AM #3
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Hello summerjc07,

Has your Neurologist told you your double vision is due to lesions found on your brain MRI?

Double vision, in MS, is usually due to lesions located in the brainstem.

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I am guessing the double vision is permanent???
If double vision is related to MS then only time will tell if the symptom will be permanent.

Another disease in which double vision can be a symptom of is Myasthenia Gravis. There is a blood test for this disease.

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I never goes away and is very blurry
Blurry vision is different than double vision, although if a person has never had double or blurry vision before it would be easy to confuse the two.

Double vision is when an eye is not tracking. A eye Dr. can determine if this is the case. Although a PCP would also be able to determine if the eyes are tracking.
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Old 10-02-2014, 10:41 PM #4
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Would special lenses help? Forgive my ignorance, I know a friend of mine who had a brain tumor which caused vision problems was able to function with prism lenses.
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Old 10-05-2014, 10:36 AM #5
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I have seen an eye specialist 3 times to check and double check the double vision. It is only in the right eye and for the most part can see fine with both eyes open with occasional double vision with both eyes open.
Even an eye/neuro specialist could not come up with anything that could cause the double vision. It is the reason we had the brain mri in the first place. The lesions are in the back right above the corpus callosum. and one is on the edge were the fluid space is. Its hard to describe I hope that makes sense. But none on the brain stem. Its the only thing that is abnormal out of any test, or screening that has been done, so I think since that is the only thing they are saying that the vision issues are from the lesions. ?
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Old 10-05-2014, 11:39 AM #6
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Hi summerjc07,

If you are ultimately diagnosed with MS then more than likely MS would be the cause of your double vision. Please do not misinterpret what I am saying, I am not suggesting you don't have MS as that is up to your Neurologist to determine.

I have had some recent experience with double vision. In the case of MS double vision is caused by brainstem lesions. This was news to me but then again I have never had visual problems that were connected to this disease.

It is possible to have MS and not have MRI evidence of current symptoms. I was diagnosed with MS with a clear MRI and I was in a severe exacerbation (relapse, attack, flare-up). My current vision problems (which are now improving) have not shown on MRI but my Neurologist suspects MS as the cause. Even though I have MS without MRI evidence other causes for my double vision needed to be ruled out.

Take care.
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