[MSbelle]

Hi everyone,
A friend of mine told me about NeuroTalk when I asked her where I could find a place to talk to people without the world knowing about my MS (i.e. FB groups).

A very long story short about me.

I'm going to be 30 this month, I live in Canada, I'm female and I was diagnosed with RRMS in December of 2013 after about a year of strange symptoms and two MRIs. I put off starting any DMDs because we were trying for a third child... I have a 5 year old daughter and a 3 year old son. After a miscarriage this summer, my MS got worse... not right away, but looking back at things I could do prior to that short pregnancy and after, there's definitely a change.

I had a neurologist appointment 2.5 weeks ago and he was quite concerned about my progression. I'm using a cane now if walking more than just around the house (and if I don't have a shopping cart ) He said if I were him he'd forget trying for a third for now and go on a DMD. After a good cry, I decided he was right. I need to be mobile to be a good mom for my kids and to take care of a new baby! Of course, a DMD is no guarantee of anything at all, but I have to start trying.

I started Fampyra (known as Ampyra in the US) last week and have since had what I think is a relapse Today is Saturday, on Thursday at work I had a lot of trouble. My main issues are my bladder (was the first symptom I had) and my legs (spasticity, fatigue, ataxia), and both were just terrible. I could barely void my bladder but then couldn't hold urine at all either when up and about. My walking was noticeably bad and people were noticing and asking what was wrong with me. It was a hellish day. Friday wasn't much better, and neither was today.

I take Low dose Naltrexone as well before bed. I've worked up to 3mg, but I'm starting 4.5mg tonight. I haven't noticed much difference and I've been on it for over a month.

My neuro is putting me on Betaseron. I've applied for provincial drug benefits and that should all get squared away this week. A nurse is going to come this week to show me how to inject the medication. I received my starter kit yesterday.

Anyway I could write more but I'll leave it at that. Looking forward to "meeting" you all and learning more about this disease.