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Old 12-18-2014, 09:49 PM #11
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that is pathetic.
who on earth is in charge of all this?

is there some agency it can be reported to?
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Old 12-19-2014, 11:29 PM #12
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I HATE Express Scripts. They are complete imbeciles and have screwed up many of my prescriptions. Every once in awhile you will get someone who seems to know what they are doing. But sometimes I'm shocked at the sheer level of stupidity. Here is my advice:

1. Every time you call them take notes on the conversation. What do they think went wrong? What are they promising? What did they say they could do to fix the problem? What are they claiming your doctor's office said?

When you have to call again you have the exact record of what was said. If they try to deny a screw up you can give them all of the details. I've kept notes and called them on their BS and got them to give me multiple week long supplies of free meds (when they send generic instead of name brand over and over again).

Sometimes they also try to blame it on your doctor's office. But if you have names of people you spoke to at Express Scripts and what those people said you can avoid the blame game.

2. Ask for the name of the person you are speaking with and write that down in the notes you take during each call. You may need this name to follow up with that person.

3. Be persistent. Just keep saying over and over again: "I need this medication right now."


Great advice Starznight about demanding a supervisor when they get weird about things!
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Old 12-20-2014, 02:08 AM #13
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"Express Scripts" ..... Even it's name is false advertising.
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Old 01-27-2015, 06:54 PM #14
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I was once again denied for my refill this month. I'm tired of fighting for this. I took my last pill yesterday. Today was my day off but I work tomorrow. Maybe it's time to throw in the towel and quit working?

I slept until 11:30 am today and so far I have done two loads of laundry, fed the kitties, took my shower and loaded the dishwasher. I'm ready for a nap. Maybe this is a sign that I've pushed myself to hard and it is time to go on STD at work until LTD kicks in then apply for SSDI?

If I go to work tomorrow (assuming I can get up and be ready to get there on time) I'll be useless.

Even with the Vyvanse it is hard for me to get there on time. I'm so slow in the morning, no matter how much sleep I've had.

My feet are numb, my hands are weak and I lose my train of thought when speaking to customers and co-workers. I helped count cash last night and it took me forever.
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Old 01-27-2015, 07:28 PM #15
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Time for O.T.D...Out The Door..
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Old 01-28-2015, 02:16 AM #16
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Wiz, sounds like it is that time. It was amazing how good I felt after letting my body have that time away form the pressures and physical duties of work.
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Old 01-28-2015, 02:02 PM #17
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Wiz - sorry you are having a tough time getting your refills and then working. Hope you can work something out. I decided to take early retirement when I just felt like I was not doing a good job anymore and I was getting sick on a frequent basis. I do miss teaching and the interaction with colleagues and students at times, but then I remember how exhausted I was all of the time.
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Old 01-28-2015, 02:47 PM #18
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I had to call off work today, they will be very short staffed. Tomorrow I see both of my doctors, the neuro, and the GP. I'm going to get my blood tests and see how my B12 and cholesterol are doing, then see the neuro and see if they can call in for the appeal for me to get the Vyvanse. DH does not want me to retire yet, he thinks I'll be miserable and go stir-crazy (he could be right) he even offered to call Express Scripts for me today to argue with them.

I'm going over my finances just in case. I've invested heavily in my retirement funds that past 12 years, but not enough to live a decent lifestyle until I'm in my 90s (the average age for many of in my family to die).

I really want to work at least five more years but I don't know if I can make it that long. I'll be 62 five years from April.
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Old 01-28-2015, 02:56 PM #19
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I have two thoughts about this... as I have been following this thread...and have some experience with drugs and insurance.

1) If you are still using that statin...I'd consider stopping it.
Statins are known now to affect memory and brain functions, which is something a MSer doesn't need. Statins will interfere with remyelination of axons in the brain. In some cases the downsides of them are far worse than believing the cholesterol myth.

2) Perhaps your insurance will pay for immediate release amphetamine of some sort ( a less expensive drug like generic adderal?). They are just declining brand name?
But then some insurances require prior authorization for ADHD drugs for adults. Usually those documents last 6mos to a year when submitted by the doctor. Adults may develop expensive and threatening cardiovascular events on this drug... so insurances don't want to pay for it.
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Old 01-28-2015, 04:20 PM #20
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MrsD

I stopped the statins about four months ago and I'm trying to control my cholesterol with my diet. I was getting bad leg spasms. They're checking my cholesterol to see if it has helped any.

My doctor's nurse said she doesn't think I should go for the cheaper ones like Adderall XR that I took before because they don't work as well. I hope I can get the Vyvanse approved. Maybe I'll find out more at the doctor's office tomorrow.

The meds do affect my blood pressure at times so I'm on the lowest dose.
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