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Jules A 02-02-2015 01:42 PM

Quote:

Originally Posted by ewizabeth (Post 1121732)
I was thinking along that line Jules since my MS existed before I started working there. But even if I got STD it would help until I could get disability. Or they could fire me and I could get six months unemployment.

You should definitely be able to get the short term disability that is about the only thing I have been eligible for through my employers. The fact that you are also working has always been an inspiration to me. I hope you are able to continue as long as you want to.

I wish I had been in a position before MS to have been offered Long Term Care Insurance, although In truth I'm not sure I would have had the foresight/maturity to have taken advantage of it. My good health and strong/fit body was always a source of pride...before MS. :(

ewizabeth 02-02-2015 10:12 PM

I felt better today. I've been on the higher dose of AD for three days and lowered my Trazodone at night, which was raised to help me sleep better with the Vyvanse. :rolleyes: My hands and legs are still weak, but I was thrilled that I actually felt better at all.

We don't get a choice for LTD, it only costs about $8 per month but we get auto-enrolled. :confused: I wonder if they would cover pre-existing conditions?

Debbie D 02-03-2015 08:47 AM

Ah...that is always the question. I would have thought the ACA would have made them cover preexisting conditions. But perhaps because you enrolled before the law was passed it might not cover this.
I tried twice to get long term coverage from 2 insurance companies. They rejected me due to the "possibility" of me having MS. I should have sued them both for that, IMO.
I'd look into it deeply before moving ahead on this, dear...

ewizabeth 02-06-2015 12:22 AM

I have the phone number for the disability insurance, I'm going to call on my day off. I cannot get up and get to work on time, it's very embarrassing. And if it gets bad enough they can fire me. And when I do get there I'm in slo-mo mode and not very effective until I've been there a few hours.

I'm hoping that the Gylenia will help somewhat with symptoms.

I've talked to DH and he is on board with me going for early disability if it comes to that. He is also not in the best of health, but he has SSI and a couple of small pensions already. If I have to do this we will be ok, not well to do but able to buy groceries and still take our vacation twice a year if I budget. I'm very good at managing money, so that's a plus. Thank God I still have my most of mind and critical thinking skills. :rolleyes:

My biggest worry is what if our sons need our help and we don't have the means to help them.

Debbie D 02-06-2015 11:07 AM

Isn't it funny how we Boomers always think of our kids and how we should be able to help them? Back when our parents were young they were the ones who took the parents in when they needed to live with someone, not usually the other way around.
You have to take care of yourself first, sweetie...you and your DH have a lot of years to live and you want to make sure you can take care of yourselves for as long as possible. The kids will be fine!!

ewizabeth 02-08-2015 12:19 AM

Even if I have to retire or go in disability, I won't be sitting around wondering what to do. My health will surely improve somewhat so I'll be able to garden more or volunteer in the community. I've been thinking about this for years and how I'll handle it if it comes to it.

We're going through a change of management at work, my main manager got a promotion and moved to Alabama (he's my sons age) so his replacement will be the one to deal with me and my health issues. :rolleyes:

Now that he is gone I'm going to see what steps I need to take, if any, I'm hoping I can see if Gilenya will help me before I need to make a drastic change.

I'm really struggling so I hope I can do this soon if necessary. It will be a matter of one door closing, and another opening, I'll step into a slower lifestyle with more rest, less stress, more creativity and higher quality of life overall. Less income too, but I think the trade off will be worth it in the long run.


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