I just started taking LDN for Complex Regional Pain Syndrome.

There is a doctor who believes that CRPS and MS are the same disease and should be combined as one in order to garner greater public interest and increase research. Based on what he said I decided to read through the MS postings, so here I am, a bit startled by what I am reading. MS and CRPS do have many similarities.

Dr Bihari, a CRPS doctor, who prescribes LDN for his patients recommends that patients ask their doctor to prescribe Naltrexone, which can easily be used to make LDN. It is not difficult to do and it is inexpensive.

The reason he suggests that patients mix it themselves is because he found that compounding pharmacies were not reliably mixing LDN. So it is possible that someone who had no response to LDN may have gotten a compound that either was sub-potent or had no potency. I know about this issue, because it happened to me with another compounded drug.

Skip's pharmacy btw is very reliable. I called them months after my compounded drug from a local pharmacy ceased working. Skip's gave me very specific formulation information along with questions to ask my pharmacist. After months of misery and hearing loss it turned out that my pharmacy changed their supplier of the main ingredient in my compounded drug.

I hope you don't mind that I posted this information.