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#11 | ||
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Member
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Starznight- very helpful information actually. Baclofen is the first spasticity med that I've been on. My neuro wasn't too keen on it so he started me on Fampyra (Ampyra) first, but a week into that I had to stop working because my gait got so incredibly bad. So much for it helping my gait. He told me to stop the Fampyra and I asked for Baclofen again and he gave it to me.
I am going to up my dose, I read up on how to do that. My nurse told me not to go up more than 1/2 a pill per day until I meet with my neuro again but they are taking their sweet time on even getting back to me with an appt. So I will do it myself. I'll stop the increasing of the dosage if I get sleepy. After reading these posts about the pump, I think I'll pass. I didn't realize it could be such a bad experience and how invasive the procedure to place it is! |
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#12 | |||
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Member
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25yrs ago I was started on 20mg 4x per day for C7 spinal cord injury.
MS 2006 increased spasms, I take 20mg 7x per day now & still get them bad. Yes i'll get worse then ever spasms if I miss a dose now that my bod adjusted to it & won't sleep well. Circulation or lack-of has something to do with spasms says me. Oxygen reduced mine a tad using oxygen concentrator at night. I'd love for someone with oxygen to try it and report results. |
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#13 | |||
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Elder
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I take 20mg at night and it helps my spasticity. I can't take it during the day because it makes my bladder whacky. But it helps to take it at bedtime.
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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"Thanks for this!" says: | SallyC (01-20-2015) |
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#14 | |||
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Junior Member
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Ask your neuro about Tegretol 200 every 12 hours as it was my only salvation after my worst flair and many medications.
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