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Old 01-07-2015, 12:03 PM #11
MSbelle MSbelle is offline
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Starznight- very helpful information actually. Baclofen is the first spasticity med that I've been on. My neuro wasn't too keen on it so he started me on Fampyra (Ampyra) first, but a week into that I had to stop working because my gait got so incredibly bad. So much for it helping my gait. He told me to stop the Fampyra and I asked for Baclofen again and he gave it to me.

I am going to up my dose, I read up on how to do that. My nurse told me not to go up more than 1/2 a pill per day until I meet with my neuro again but they are taking their sweet time on even getting back to me with an appt. So I will do it myself. I'll stop the increasing of the dosage if I get sleepy.

After reading these posts about the pump, I think I'll pass. I didn't realize it could be such a bad experience and how invasive the procedure to place it is!
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Old 01-08-2015, 07:08 PM #12
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25yrs ago I was started on 20mg 4x per day for C7 spinal cord injury.
MS 2006 increased spasms, I take 20mg 7x per day now & still get them bad.
Yes i'll get worse then ever spasms if I miss a dose now that my bod adjusted to it & won't sleep well.
Circulation or lack-of has something to do with spasms says me. Oxygen reduced mine a tad using oxygen concentrator at night. I'd love for someone with oxygen to try it and report results.
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Old 01-12-2015, 11:25 PM #13
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I take 20mg at night and it helps my spasticity. I can't take it during the day because it makes my bladder whacky. But it helps to take it at bedtime.
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Old 01-20-2015, 08:19 PM #14
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Ask your neuro about Tegretol 200 every 12 hours as it was my only salvation after my worst flair and many medications.
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