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Old 01-21-2015, 06:49 AM #1
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Thumbs up Immune System Reset May Give MS Patients a New Lease on Life

https://www.sciencenews.org/article/...new-lease-life
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Old 01-21-2015, 07:28 PM #2
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Default System reset

It's a start ... good for RR, but not SP or PP.
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Old 01-22-2015, 03:27 PM #3
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I like these sort of things and this looks very promising, but at the same time it makes me so anxious for them to hurry up so I can drive down there and let them do whatever they want so I can get this treatment before it's too late.
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Old 01-23-2015, 10:40 AM #4
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Originally Posted by msbluis View Post
It's a start ... good for RR, but not SP or PP.
Actually it doesn't say that it won't help with SP or PP MS just that RR patients received more benefits from the treatment. It might be some as simple as having more follow up treatments in those with SP or PP MS. The most intriguing part of the report is that ALL patients saw a reduction in existing lesions. Even if a PP patient needed to go for annual treatments that's still far better than any of the current treatments, especially if it reverses some of the damage, with the hopes of complete reversal.

I'm sure it's still a long way off before it'll be available, and longer still before insurance companies will cover the treatments, but it shows promise if the report is correct. I'd love to see the whole study!
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Old 01-24-2015, 11:13 AM #5
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I hate how long everything takes before it can become something we can benefit from. I get why but then again things like this should be expedited!! Hurry up!!!!
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Old 04-19-2015, 09:15 AM #6
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I hate how long everything takes before it can become something we can benefit from. I get why but then again things like this should be expedited!! Hurry up!!!!
MSbelle, I hate to be "negative Nelly" but I honestly don't think they (big Pharma) want to find anything close to a cure. They're making way too much money on the symptom meds......and the ones they hype up so we get our hopes up only to find it's just more of the same.

Doctors line Big Pharma's pockets while we (the patients) line both the doctor's and Big Pharma's pockets...........all while some of us struggle to now live on a fixed income.
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Old 04-19-2015, 09:31 AM #7
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Quote:
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MSbelle, I hate to be "negative Nelly" but I honestly don't think they (big Pharma) want to find anything close to a cure. They're making way too much money on the symptom meds......and the ones they hype up so we get our hopes up only to find it's just more of the same.

Doctors line Big Pharma's pockets while we (the patients) line both the doctor's and Big Pharma's pockets...........all while some of us struggle to now live on a fixed income.
Hence why I'm going onto hGH as .. remyelination sounds pretty cool.

But I really hope with the church and crap out the way that this can be sped up.

I agree, in theory they work - when the neurologist asks me to choose a medication, I do this:

I grab every pamphlet, and count the number of people smiling/smiling faces in the 'marketing material'.

The one with the least smiling faces wins. But I fill the script to shut him up, then walk out.

We've known this for about 10 years now..
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Old 04-19-2015, 09:49 PM #8
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MSbelle, I hate to be "negative Nelly" but I honestly don't think they (big Pharma) want to find anything close to a cure. They're making way too much money on the symptom meds.

I really hate getting reminded of this. I believe it too and it's not fair.

I also think it's ******** they can't even figure out how exactly it starts....what is the main cause. They probably do know.
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Old 04-20-2015, 03:37 PM #9
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Quote:
Originally Posted by Kitty View Post
MSbelle, I hate to be "negative Nelly" but I honestly don't think they (big Pharma) want to find anything close to a cure. They're making way too much money on the symptom meds......and the ones they hype up so we get our hopes up only to find it's just more of the same.

Doctors line Big Pharma's pockets while we (the patients) line both the doctor's and Big Pharma's pockets...........all while some of us struggle to now live on a fixed income.
Unfortunately I agree too. They want money, not a cure. I wouldn't be at all surprised to find out they know how to cure it and have been suppressing that all along.
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Old 01-24-2015, 07:38 PM #10
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Default Reading between the lines

[QUOTE=Starznight;]
Actually it doesn't say that it won't help with SP or PP MS just that RR patients received more benefits from the treatment.

You're right, Starz, but having waited for over TWENTY years as PP for anything, any little thing, that might resemble hope for advanced MS patients, it would sure be nice for someone to even specifically mention the possibility of any, even if it's small, chance of help for PP and SP.
I don't have another twenty years left to wait.
I'm a quadriplegic, living in a nursing home 30 miles from my beautiful, accessible home, my husband of 34 years and my beloved pets, surrounded by octenagerian, dementia-affected, lovely but lonely, sad residents.
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