Member
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Join Date: Nov 2014
Posts: 115
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Member
Join Date: Nov 2014
Posts: 115
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When to go in for steroids?
I have never gone in for steroids since having been dx with MS. I have never had optic neuritis but I have had some relapses that have made me wonder if I should have (but I never ended up doing so).
I did a re-trial of Ampyra starting yesterday and, just like when I tried it before, now I'm having problems. Before after 10 days of it, my walking deteriorated greatly. Now, worse... I have this burning sensation in my legs that is just debilitating. It's in my glutes, my hips, thighs, ankles, feet... so brutal. It's 2:13am right now and I'm NOT a night owl but I had to get up to come and put ice on my legs for some relief (which doesn't help really).
I have spinal lesions that are the reason for my leg problems and I'm wondering if they're inflamed, and if so, if steroids would help. I was hopeful it was just the Ampyra and I'll continue to be hopeful, but if it's from my lesions then I would like some relief. Should I go in?? And if you think I should, how on Earth do you do that? Just go to emerg? Honestly I've never been told what to do in case of a relapse that requires attention.
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