Just read some of your stories, thanks all.

Just reintroducing myself here.

I was diagnosed with MS in 1980 but had had symptoms that were cramping my style in a big way for a couple of years before that--lots of falls, and after walking a couple of blocks, I'd start to have what seemed to be back and leg problems, and sometimes my eyes acted up in weird ways. Electric-shock sensations in my neck. Some bladder problems too.

After yet another fall and yet another broken bone, I asked to be referred to a neurologist, who diagnosed MS after consultations with an otolaryngologist and ophthalmologist and lots of tests. There was no MRI at the time.

The ENT doctor found I had nystagmus probably caused by a lesion in the pons. Years later I started having MRIs, and by now I've had 5 of them, all showing MS lesions.

But none of the lesions have been enhancing, and so I've been lucky. I can still walk though outside my (small) apartment I use a rollator now. Since the mid-1980s I've had a manual wheelchair and I sit in it most of the time.

I use it on bad days when I can't even get around my apartment and if I have an appointment or some other place to get to, I take the paratransit van with my wheelchair. I don't know when I'm going to give out, and just staying in the wheelchair for situations where there is a lot of uncertainty works for me.

But I do try to walk at least 1,000 steps a day and check my pedometer at the end of every day.

I also have Type 2 diabetes and so far haven't been on insulin though I'm on a fairly strict diet. I've been eating a lacto-ovo-vegetarian diet for about 30 years now.

The eye problems calmed down over the years though I now have cataracts. I've been postponing cataract surgery and will probably keep on postponing it. My best corrected vision is now only 20/40 to 20/60 but I can get along.

I was plagued by kidney stones for about 10 years, and the pain was very nearly intolerable. I am very glad not to have had any more of that pain in recent years.

I have osteoarthritis that causes pain and stiffness, and a certain amount of swelling in my lower legs but aside from those issues, I'm doing OK.

Since moving to another state 10 years ago, I've had only a few falls and no bones were broken. I'm very lucky.

I don't do much and don't go many places. I shop online for everything and use a grocery delivery service or Instacart for groceries. I live in HUD rental housing that has been my salvation. It's even air conditioned.

I've never had a car. I don't cook much any more. In the last 10 years or so I've been eating frozen or packaged meals for dinner and limiting my cooking to steaming or boiling vegetables (fresh or frozen) and toasting a muffin or piece of bread in the morning. Life is much easier without doing so much cooking.

The neuro who diagnosed me thought that the first MS episode might have happened when I was 20 but it can't be proved because no one thought to look into it at the time. I had severe vertigo for no known reason, and I blacked out and fell, destroying 4 front teeth. Two more teeth had to be filed down to support the bridge that was made for the 4 missing teeth. I had another vertigo episode about 12 years later, and some episodes of inability to move my legs. But up until my mid-30s I was pretty healthy otherwise, except for frequent sinus infections that always required antibiotics. I had one or two of those a year. I'm glad not to have those any more either (knock on wood).

I also had many UTIs over the years.

My hearing began to go about 15 years ago, when I got hearing aids.

So that's my health history, if anyone is interested. I've been floating around on several MS boards for nearly 20 years and hope to be more active here.

I miss Sally so much

I was dx in 1988 at almost 40. I was lucky dx came quickly by MRI. No meds and if there were they would've taken credit for me being sx free for 13 1/2 yrs. I attribute doing so well to healing prayer and meditation.

I went on Copaxone for 2 1/2 years to find my MRI was lit up like a Christmas tree. I was then offered Tysabri which I started in 2006. It was my G-d send as I was physically going down hill and scared. I have been on Ty ever since and many sx abated and progression halted. I use a scooter, walker or cane because my R leg doesn't move well-other than that I'm doing mostly ok. If I had been able to go on Ty a year earlier I would be walking and dancing like I wish.

This is my story and I'm sticking to it

Linda

Yes, Sally is greatly missed!

Linda, thank you for posting. Congratulations on staying with Tysabri--and I'm so glad that it's been helping.

Some months ago I heard that researchers were working on a new version of Tysabri that would make it possible for the infusions to be done at home. Have you heard anything about that?

I haven't heard about a home infusion. Even if I had, I don't think I would want to do that ??

I'm not on Tysabri but it would make me nervous not to be in a setting where there would be appropriate equipment at hand.

Hi, all:

I'm new here, and not really posting much about myself as I am about others in my family, but I'll share my story:

In 1981 I was 18 and new at college. A couple months into fall semester, I was having what I called "my spells". When I would reach for something, my hand wouldn't go to whatever I was reaching for, but off to the side. My feet wouldn't land in the right spot when walking, never mind running, which I had to give up for the most part. I was exhausted. Occasionally, there would be a "blot" in my vision, as if a finger was coming into my field of view. I couldn't bring the words I'd have in my head to my lips to speak. I would have a headache like the dickens, but chalked all of this up to college stress.

January 1982, I was back on campus after Christmas still not feeling "right". I walked into the common area of my dorm when I saw large white balls sort of like those old film reels and you get to the end of the reel? Then down I went. Next thing I knew, I was in the hospital. I was there for four days while they ran CAT scan, LB, and other tests (way before MRI). The diagnosis was that it walked like MS, quacked like MS, but was inconclusive based on the tests. I took that to mean pretty much MS.

Since then, thankfully, I have not had anything that severe again, though the feet not landing right (drop foot?) has always persisted in some form. I enjoy walks with my husband but occasionally use one of his canes. I pace myself now and am experimenting with a plant-based diet. In college I was pretty much ignoring myself and I think that hurt me, MS and otherwise.

COVID, ironically, hurt my hands. We have to wear gloves at work and this makes me not feel a lot in my fingers. They make me more "fumbly". Hand exercises and finger stretches really help.

I feel blessed that so far, relapses are rare and pass pretty well. Something else might get me way before MS. I keep all of you in my thoughts, although I just found this site four hours ago