Hi,
My name is Tracy and I live in beautiful BC, Canada.

On Feb 1, 2015. I started having pain and loss of vision in my right eye. This began a series of appointments with opthalmologists, neurologists and my GP.

I have been diagnosed with Optic Neuritis, and probable MS.

I have previously had Thoracic Outlet Syndrome, and bilateral rib resections.
My GP blames everything on fibromyalgia, and says there is no pain in MS.

So far I have had a VEP, but have not received the results yet. I am waiting for the hospital to schedule an MRI.

I am frustrated and at a loss.
Since the ON started I have had a few other things crop up. I am not sure what to do.

My Dr and I get along really well, but we disagree on quite a few things. (No suggestions to get a new GP, it is impossible here)

I have been treated for years for bladder retention, by having my urethra dialted. That, however doesn't help and doesn't address the leakage isuues. I also recently developed sporadic bowel leakage as well.

Now, I have ON symptoms in my left eye as well as my right. I went through three or four days of balance issues. I have fallen several times. ( Mostly up stairs) I have developed tingling from my waist down, in the tip of my tounge, my lips and fingertips.

I get bad spasms in my back, calves and feet.

I am exhausted, I'm in bed 11 hours a night. I get up 5 times a night to pee. The spasms wake me up. Arghh.

I don't want to go to my GP, he blames everything on fibro. Since I have a long pain history and have experience in the medical field, I am in danger of being labeled as having "Facticious Disorder".

The problem is, until I have my MRI I can't get into see my neuro.

Needed to get this off my chest.
Sorry for the long first post.
Tracy

I just got off the phone with my opthalmologist. He got the results of my vep, and says they are very concerning. There are abnormalities in both eyes.
He wants to see me on Tuesday for more tests.
Now I am supposed to call the neuro.
Wish me luck.
Tracy

Welcome Tracy.. So nice to have you with us. I agree, call your Neuro
for a reading and evaluation of your MRI. Your symptoms are screaming
MS or something similar.

Good luck and please let us know. We are with you all the way.

Where is everybody????

hi tracy and welcome to NT,

going thru this diagnostic process can be very stressful. i remember when it was happening to me.
try to take one test and one day at a time. if you have a friend or family member who can go to dr visits with you get a buddy for a 2nd set of ears.

for me, to more information i got (even the dx of MS) the more power i had. the more control i got. if that makes any sense.

it sounds like your drs are doing everything they can and are taking you seriously. hang in there and keep us posted. we're here for you.

I just got off the phone with my neuro. He wants to see me asap. The next available appointment is June 15. Yes, in Canada that is asap.
Tracy

Hi Tracy. Welcome to NeuroTalk.

I'd like to inform your GP that yes, there is pain with MS. Not constant pain but some of the symptoms are uncomfortable.

My MS started out with Optic Neuritis, too.

I'm sorry you have to wait so long to see the Neuro. There's another member here from Canada and I remember her talking about how long the wait is sometimes......even for urgent needs.