Welcome to NT...sounds as if your docs are on top of things test-wise. Good to see that they checked for Lyme, since it can mimic MS symptoms.

Also glad to see you're keeping track of your tests. Make sure to keep a symptom journal too with dates of onset. Also a list of ? for your neuro appt.

Most of all, try your best to live life in spite of the challenges. It's so frustrating when you don't know WHY these symptoms are occurring; but try to make lemonade out of the lemons you've been given.

I hope you get an answer soon so you know what you're dealing with!! I was so relieved to finally get an answer...and then reality set in:(

Keep us updated please...this is a great place with great advice and support...:hug:

Not having an answer has been hard - I want to know what it is so I can start treatment. The MRI reports are normal but are between 1 and 2 years old now. Hopefully the new neuro will run new MRIs. Thanks for the support!

Jess, since you don't know for sure and if it were me and what I know now and I've followed by sister's path with MS for a lot of years.... I would surely follow Ann's nutritional plans and be sure your Vit D is optimal ...her book is Healing MS and I have a thread about this. Eliminating and reducing sugars/carbs for anyone makes sense...

I'm still awaiting the results of my bloodwork. Hopefully tomorrow before the weekend. My left arm has been bothering me more lately (weakness, pain) and has started to feel like it "wants" to be bent a little, like it's more comfortable. I just noticed tonight that if I let my arm hang down, it doesn't straighten all the way like my right one does. Similar with my left hand, it takes a bit of effort to straighten it out. Weird!

My hubby is awesome and went to the store, but I haven't yet taught him what is too heavy since this flare-up is worse than before. So he came back with a 2.5 lb thing of peanut butter. I tried to lift it with one hand and got it about 1" of the counter. So I will be scooping it into the smaller jar lol.

My bloodwork came back. It looks like a few tests were cancelled by the lab for some reason, and I know my GP added folate but that isn't listed, and I would think she also added vit D and B12 (tested normal previously) but those aren't listed either. Strange!

I have my appointment with the neuro on Wednesday. I'm going to call my GP about some of these results. I have had similar thyroid results before but she doesn't think there's an issue with my thyroid itself.

RA Latex Turbid 4.6 IU/mL [0 - 13.9]
Sjogren's Anti-SS-A <0.2 AI [0 - 0.9]
Sjorgen's Anti-SS-B <0.2 AI [0 - 0.9]
WBC 6.3 x10E3/uL [3.4 - 10.8]
RBC 4.71 x10E6/uL [3.77 - 5.28]
Homoglobin 13.8 g/dL [11.1 - 15.9]
Hematocrit 42.3% [13 - 46.6]
MCV 90 fL [79 - 97]
MCH 29.3 pg [26.6 - 33]
MCHC 32.6 g/dL [31.5 - 35.7]
RDW 13.1% [12.3 - 15.4]
Platelets 302 x10E3/uL [150 - 379]
Neutrophils 62%
Lymphs 25%
Monocytes 5%
Eos 8%
Basos 0%
Neutrophils (Absolute) 3.9 x10E3/uL [1.4 - 7]
Lymphs (Absolute) 1.6 x10E3/uL [0.7 - 3.1]
Monocytes (Absolute) 0.3 x10E3/uL [0.1 - 0.9]
*Eos (Absolute) 0.5 x10E3/uL [0 - 0.4]
Baso (Absolute) 0.0 x10E3/uL [0 - 0.2]
Immature Granulocytes 0%
Immature Grans (Abs) 0.0 x10E3/uL [0 - 0.1]
Lyme Western Blot IgG Negative
Lyme Western Blot IgM Negative
Free T4 1.41 ng/dL [0.82 - 1.77]
TSH 2.660 uIU/mL [0.450 - 4.500]
CCP Antibodies IgG/IgA <1 [<20]
*T3 Uptake 21% [24 - 39]
*Thyroid Perioxidase (TPO) Ab 48 IU/mL [0 - 34]
Sed Rate 23 mm/hr [0 - 32]
Creatine Kinase, Total, Serum 44 U/L [24 - 173]
Magnesium, Serum 2.1 mg/dL [1.5 - 2.6]
Complement C4, Serum 31 mg/dL [9 - 36]
Complement C3, Serum 154 mg/dL [90 - 180]
Aldolase - Unable to obtain valid result
*C-Reactive Protein, Quant 10.1 mg/L [0 - 4.9]
Glucose, Serum 82 mg/dL [65 - 99]
BUN 11 mg/dL [6 - 20]
Creatinine, Serum 0.77 mg/dL [0.57 - 1.00]
eGFR If NonAfrican Am 105 mL/min/1.73 [>59]
eGFR If African Am 121 mL/min/1.73 [>59]
BUN/Creatinine Ratio 14 [8 - 20]
Sodium, Serum 139 mmol/L [134 - 144]
Potassium, Serum 4.1 mmol/L [3.5 - 5.2]
Chloride, Serum 100 mmol/L [97 - 108]
Carbon Dioxide, Total 22 mmol/L [18 - 29]
Calcium, Serum 9.9 mg/dL [8.7 - 10.2]
Protein, Total, Serum 7.2 g/dL [6.0 - 8.5]
Albumin, Serum 4.6 g/dL [3.5 - 5.5]
Globulin, Serum 2.6 g/dL [1.5 - 4.5]
A/G Ratio 1.8 [1.1 - 2.5]
Bilirubin, Total 0.8 mg/dL [0 - 1.2]
Alkaline Phosphatase, S 49 IU/L [39 - 117]
AST (SGOT) 18 IU/L [0 - 40]
ALT (SGPT) 24 IU/L [0 - 32]

Urinalysis
Specific Gravity 1.009 [1.005 - 1.030]
pH 7.0 [5.0 - 7.5]
Color - Yellow
Appearance - Clear
WBC Esterase - Negative
Protein - Negative
Glucose - Negative
Ketones - Negative
Occult Blood - Negative
Bilirubin - Negative
Urobilinogen,Semi-Qn 0.2 EU/dL [0 - 1.9]
Nitrite, Urine - Negative
WBC 0 - 5 [0 - 5]
RBC None [0 - 2]
Epithelial Cells 0 - 10 [0 - 10]
Mucus Threads - Present
Bacteria - Few

What do you think about all your labs? They look pretty good to me, CRP is high but that can come down with constant Omega 3's which I use and brought my CRP to 1.3 or so. I had elevated Fibrinogen and it's coming down too with Natto and Vit C and 3's and other oils. I don't see that test, but it's special ordered with Lipid panel. Have you had D levels done in past?

It's best for your doc to explain the test results. The thyroid numbers are interesting...

Omega 3 isn't a bad idea. I am waiting on a call back from my rheumatologist to discuss the results. The CRP and thyroid results are similar to when this all started 2 years ago. She didn't think that those explained my symptoms and doesn't think that it's RA or Lupus. My vitamin D and B12 were tested at that time and since then and were normal. The neuro will probably order more tests on Wednesday.

Just remember when docs say "normal" or labs are in range of normal, one can be high or low or mid normal. A doc many years ago, back in 1991 and for 10 yrs said my thyroid labs were normal, and I was sluggish all those years...my story is long, but now I look at the ranges and see where the "normal" is... And as I've thought for many years, we are not numbers but have symptoms and the numbers are good gauges BUT....

The test result that would be of concern to me is your CRP level. I agree with Debbie D that you should have your doctor explain it to you. The Mayo Clinic categorizes your result of 10.1 as in a high risk category:

http://www.mayoclinic.org/tests-proc...s/prc-20014480

An excerpt:

“A test result showing a CRP level greater than 10 mg/L is a sign of serious infection, trauma or chronic disease, which likely will require further testing to determine the cause.”