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Old 09-30-2006, 04:16 PM #21
dayle dayle is offline
Junior Member
 
Join Date: Sep 2006
Posts: 15
15 yr Member
dayle dayle is offline
Junior Member
 
Join Date: Sep 2006
Posts: 15
15 yr Member
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Quote:
Originally Posted by dumblonde View Post
Hi Dale,

I receive IVIG here and I've got the track marks to prove it.

I wish you could find a doctor there who was willing to prescribe it. I'm not the only one here either (nor am I a baby or baby-producer ) So sorry to hear of your challenges with your daughter. Wishing her, and you, the best.
Hi DB:

So they are using it at the centre out there? How are you responding? Which form of IVIg is it? Dr Freedman had stated they were working on a promising form- a newer class. I was hoping it would get to trials because my osteo is so bad i really really don't want to risk steroids again. My neuro mulled it over, and told me a recent study was disappointing and that it would not be available-but i cannot find results for any recent ivig studies, so i don't know what the heck study he is referring to.
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