Lynn, I just had blood work done last week so I'll probably know my JCV status in a couple of days.

He was also talking about trying Gilenya. I don't know anyone who has taken that med but I have looked it up and it seems pretty much like all the others.......risks and benefits.

I've decided to look for another Neurologist. There's been too many instances of him not disclosing all the risks for certain meds (PML to be exact).

I know it's my responsibility to at least do my own research before blindly accepting what I'm told as the truth.....and I have learned that lesson well with the suggestion of MS drugs that carry a significant PML risk (Tysabri and Gilenya).

And the knowledge that the FDA issued a PML warning for Tecfidera and I was on that drug for nearly a year before having a terrible allergic reaction and stopping it. And I am JCV positive and had NO testing before starting the Tec!!

Never again will I accept what I'm being told as the truth before confirming it myself.

it's a sorry state of affairs but you're right kitty.
we all have to be smart consumers and unfortunately that means in healthcare too.

i hope you find the right dr.

You're right-we have to be proactive health care consumers!!

Do your research in finding a new doctor as well...hope you can find an MS specialist.