Kenya! Wow! Are they bringing souvenirs?? I want a kalimba! Cool. That has to be one heck of a commute, AZ, any chance you could go over to visit some time? Amazing, what a diverse world we share. Dude, you totally need those super slippery furniture skates. They work miracles! Heck, sometimes I move the refrigerator just for kicks.

LeeAnn, are we talking vertigo or basic light-headedness? Both are a drag but vertigo is a bloody nightmare. Man, I hope this passes soon.

So sorry AZ. I know the feeling....sheesh. Hugs for you..:hug:

Snoopy, I only had Vertigo once, a few years ago, but It was just awful. It lasted about a week and then went away. I couldn't move without vomiting.:eek:

I have had small bouts of dizzyness, usually from a new med. Paxil made me dizzy for awhile. My new glasses made me dizzy until I got used to them.

I hope this passes fast, Snoopy.:hug:

Cindy, I don't think it's vertigo. I'm just dizzy....It doesn't make me feel sick just off balance, you know, walking like I'm drunk and bumping into things. I even wonder if it's MS related. I'm okay when I sitting down it's just an issue when I walk:eek: :p

Thoughts about possible reasons other than MS......stopped Cymbalta cold turkey.....no scolding, I'm famous for doing stupid things like that with ADs. An inner ear issue but I have no idea if I have an inner ear issue:p and finally symptoms get worse for me as I get close to that certain time of the month and it's coming up....yipee:rolleyes:

Thanks Sally, I also hope it goes away fast:)

Sally C

If you do nothing else tomorrow other than think your life is worth living.
do this............ take time to concentrate on you.......pamper yourself, take longer to bathe, dress, and,............take time to choose the clothes you wear.. put on your make-up, do your hair......... the more time you focus on you......... the more you will want to carry on.

GOD bless.

Sally, I'm so sorry you feel down right now. I know when I had my first real bad excacerbation that took me off work, I gave away all my cross stitch supplies, even down to the last needle. I didn't have a single hoop or book left. About a year after my Solu Medrol, a dear friend I met on the internet encouraged me to try it again. I went to Walmart and got an all inclusive kit. It was a little rough at first but wonderful when I finished it. I sent that picture to her and have done many since then. Unfortunately I had to buy all new supplies again though! I hope you get back on your feet again!

I'm having trouble with my sleep patterns. I am waking up at 7 AM when I ususally sleep till about 10. I know, that's kind of late for some of you. But it really makes me tired all day and then I have my usual huge burst of energy about 8 PM.

My daughter and son in law are redoing my tiny pantry for me. Today he sanded it all down, primed and painted it. Tomorrow they will put the shelves back up and in a new configuration. And hopefully soon they will paint my kitchen. All they ask of me is to buy them supper. So my kitchen is in a total state of disrepair right now. All the pantry items are sitting on any counter available. My avacado green stove is drywall dust white. I still have drywall dust in my hair and nose hairs and I can still taste it. But it will look nice. It has been the new house cream for 27 years now.

I'm still kicking!

How am I today? I think it's official - exacerbation. I don't think I can ignore this any longer. I see the study doc on Tuesday and let's see what his assessment is. I don't think he's going to be very happy, I know I am not. :(

My feet and legs hurt so bad that I can hardly walk and vicodin is just taking the edge off enough so I can at last get some sleep. I don't think I've been this bad in a very long time. It hurts to walk. This is new. Not something I have experienced before and I don't know how to handle it.

This is burning pain, not the tinglies and prickles that I have had before. Last night laying in bed, my feet were also buzzing so bad I kept looking at them wondering what was going on (like I was going to see something :eek: )

It's not that I over did on my trip, it's been coming on for about 2-3 weeks. I am sure that the travelling didn't help along with trying to get a lot of stuff done before I left.

Geez, I almost hate to post on this thread in case I mess up my karma or something!!

I am sitting in my "mother-in law's" back yard basking in the sun and checking in on everyone. We are in Ilion, NY for our last scheduled wedding/shower/graduation (since May 1st!!). My sister in law married a bluegrass musician/pilot. ( or is it a pilot/bluegrass musician? both jobs are equally hard in my book!)

The wedding was yesterday. Everything was beautiful. It was here in the yard, with flowers everywhere, loads of Italian food ( these people are IRISH!!) a bluegrass band for the reception and all of my fiance's brothers and sisters here but one ( that would be 10 out of 11) along with respective spouses and children.

We camped out under the tent and just cleared our stuff away for the day. Everyone thinks we are nuts, especially with two kids with us! I swear it was about 55 degrees at night, with air mattresses and sleeping bags it was nice and cool, but they are all acting like it's polar weather and throwing blankets at us!!!

We went up to a lovely gorge and swam today, the water WAS freezing! We are off to a barbeque in an hour or so at one of the sibling's homes.

I actually feel GREAT. I helped strike huge tents and clean up all the wedding garbage, picked up the butts on the ground, watered the flowers, helped with breakfast and on and on and on and I am not even tired!!

I think the Tysabri is starting to work it's magic!!

I do know what your experiencing, that's part of what my exacerbation are like. Have you ever tried Baclofen? When my legs and feet get like that the Baclofen was a life saver for me.....of course your doctor may have a better idea.

The buzzing/vibrations are sensory....fun aren't they....NOT.

I'm betting the amount of time you were out in the heat had alot to do with it.....heat can trigger a full blown exacerbation in many of us.

Do you know if this will affect your participation in the Tovaxin Trial?

Not sure if you care for hugs but too bad:hug: :hug: :hug: :hug: :hug:
I added a few just to see if I could tick you off:p

Thanks LA. I can't take Baclofen. I've had the buzzing before so it's not new, but the burning sensation is. Heat has always bothered me, but not like this time. It usually goes away once I get my core temp down so that's why I know this is a "for real" exacerbation.

As for effecting the trial? I can do steroids once during the year long trial. So, I guess I will find out what the doc says next week. If the symptoms can be treated and I don't have any new or enhancing lesions, I guess we can just let it play itself out. I don't want to do steroids. I am not doing well on them at this point anymore. I am getting an MRI on Tuesday.

Tick me off? Nevah! Not you. Thanks and back at ya :hug: :hug: :hug:

Well, I'm about to rant. I've been in a mood the last few days with my personal, digital armageddon, and trying to make a lot of plans come together. Now this! (I'm a little hormonal today also)

I am so angry right now! It rarely happens, but I got so angry today, it actually made me cry. I was watching the show about bariatric surgery candidates and there was a woman featured who felt so sorry for herself, complained about how she couldn't do this, and couldn't do that, and how unfair it is, etc. etc. etc. The more I listened to her, the more furious I got. Before anyone jumps down my throat, yes, I do know what it is like to be morbidly obese, yes, I do know how hard it is to live like that, and yes, I do know how hard it is to lose the weight. Yes, I have done it, without surgery.

All of her whining infuriated me beyond belief! How dare she sit there and claim that she is powerless when I have NO OPTION for control of this disease, NO WAY to fix it, NO ONE who can undo what it has done to me, and NO HOPE of it changing me back to who I once was!?!!! I hate the weakness in her spirit and I hate how angry I am! How dare they want me to pity them?!? She is eating upwards of 6,000 calories PER DAY (that she admits)!

I think I need another nap.

This should prove conclusively that I am a way bigger beotch that some of you may have suspected.