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Old 06-30-2007, 11:30 AM #1
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Default How are you today?

Hey everyone, let's just have a thread to check on each other, eh? I wonder about so many of you every day, so how about we just check in on how we're doing in general, right here?

I'm pretty okay today, ideal weather and taking it easy. I'm struggling with some plans right now and part of my decisions depend on other people, so I'm kind of hanging in limbo and trying to conserve my eyedropper's worth of energy.

How's it by you??
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Old 06-30-2007, 11:47 AM #2
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Well, Cindy, other than wanting to set aside a large bottle of heavy sedatives to take, I'm fine.

I am so so bored with my life right now. I hate getting up in the morning. There is nothing to look forward to, anymore. I'm not depressed, just not happy, and I have always been a happy go lucky person.

I know exactly how you feel about not wanting to give up your trips or driving, in general. I did not renew my DL in January of 2006 and haven't driven since. It is so hard not to just get in my mini van and go.

Physically I am okie dokie but mentally, I am sick and tired of being sick and tired. MS has ruined my life.

Aren't you glad you asked?.....NOT!
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Old 06-30-2007, 11:51 AM #3
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Quote:
Originally Posted by SallyC View Post
Well, Cindy, other than wanting to set aside a large bottle of heavy sedatives to take, I'm fine.

I am so so bored with my life right now. I hate getting up in the morning. There is nothing to look forward to, anymore. I'm not depressed, just not happy, and I have always been a happy go lucky person.

I know exactly how you feel about not wanting to give up your trips or driving, in general. I did not renew my DL in January of 2006 and haven't driven since. It is so hard not to just get in my mini van and go.

Physically I am okie dokie but mentally, I am sick and tired of being sick and tired. MS has ruined my life.

Aren't you glad you asked?.....NOT!
Hello Sally,
A great big HUG just for you! I wish we could come pick you up for a week or so, and have you be our guest. We'd have a ball together. There's always complete chaos in our lives. You'll be begging to go home to your quiet life in no time.

Chin up,
Chris
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Old 06-30-2007, 12:09 PM #4
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Wow, Chris, I've been watching that nightmare on the news. It's so hard to comprehend how anyone can arrive at a decision to do something like that. Really, what exactly does it accomplish for them? Idiots.

Bummer about the house situation, so many people go through this, don't you wonder if it would make more sense to write a seperate contract for each job with a caveat for witheld payment on do-overs? I've often wondered why those contracts don't come with fines for botched work. Say, you bill at $250 per hour, so you fine them for your lost time and effort at righting their wrongs. You could get your house for half price at this rate.

Sal, I understand completely the sense of lost purpose. I go through huge phases when I can't even justify remaining alive. It's not depression, it's just a sense of vast nothingness. Bleah. Hopefully, things will look up for you soon, if I knew how to make it go away, I'd do it for you!
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For every day I choose to play,
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"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
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Old 06-30-2007, 12:30 PM #5
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wow Chris,, hang in there,,

Sally, I grieved my loss, and figure things could be worse, me a phys ed teacher and aroebics instructor,, it hurt,, but life goes on,, I still excercise, but pace it,,

Cindy, haven't met you. so howdy,, plans,, they can be adjusted, they always see to find a way to either screw up, and work out,, well least ways for me they do,,,

today we have a road partay,, I live on a dead end country road,, so all the neighbors. are getting together, to drink/eat and be merry,,hey I don't want to be merry,, maybe a Wilma,,

health.. I feel I need Tysabri,, been falling down way to much today.. the 9th, I go get infused...:Sigh

Peg
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Old 06-30-2007, 12:36 PM #6
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Yeah, Peg, howdy! I am about the most spontaneous person on the planet, but I cringe at the thought of letting others down. It's hard to make plans that may/may not hinge on several other factors. When it's just me, I don't sweat it, but when disappointing several others comes into play, I just don't have the heart.

Sounds like my kind of party! Wish I could swing by! Around here, we're partial to fun with blenders. Spontaneous gatherings of women who need a break from reality.
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For every day I choose to play,
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"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom

Last edited by AfterMyNap; 12-13-2007 at 08:21 PM.
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Old 06-30-2007, 09:42 PM #7
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Sally C

If you do nothing else tomorrow other than think your life is worth living.
do this............ take time to concentrate on you.......pamper yourself, take longer to bathe, dress, and,............take time to choose the clothes you wear.. put on your make-up, do your hair......... the more time you focus on you......... the more you will want to carry on.

GOD bless.
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Old 06-30-2007, 11:06 PM #8
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Sally, I'm so sorry you feel down right now. I know when I had my first real bad excacerbation that took me off work, I gave away all my cross stitch supplies, even down to the last needle. I didn't have a single hoop or book left. About a year after my Solu Medrol, a dear friend I met on the internet encouraged me to try it again. I went to Walmart and got an all inclusive kit. It was a little rough at first but wonderful when I finished it. I sent that picture to her and have done many since then. Unfortunately I had to buy all new supplies again though! I hope you get back on your feet again!

I'm having trouble with my sleep patterns. I am waking up at 7 AM when I ususally sleep till about 10. I know, that's kind of late for some of you. But it really makes me tired all day and then I have my usual huge burst of energy about 8 PM.

My daughter and son in law are redoing my tiny pantry for me. Today he sanded it all down, primed and painted it. Tomorrow they will put the shelves back up and in a new configuration. And hopefully soon they will paint my kitchen. All they ask of me is to buy them supper. So my kitchen is in a total state of disrepair right now. All the pantry items are sitting on any counter available. My avacado green stove is drywall dust white. I still have drywall dust in my hair and nose hairs and I can still taste it. But it will look nice. It has been the new house cream for 27 years now.

I'm still kicking!
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Old 07-01-2007, 12:17 PM #9
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How am I today? I think it's official - exacerbation. I don't think I can ignore this any longer. I see the study doc on Tuesday and let's see what his assessment is. I don't think he's going to be very happy, I know I am not.

My feet and legs hurt so bad that I can hardly walk and vicodin is just taking the edge off enough so I can at last get some sleep. I don't think I've been this bad in a very long time. It hurts to walk. This is new. Not something I have experienced before and I don't know how to handle it.

This is burning pain, not the tinglies and prickles that I have had before. Last night laying in bed, my feet were also buzzing so bad I kept looking at them wondering what was going on (like I was going to see something )

It's not that I over did on my trip, it's been coming on for about 2-3 weeks. I am sure that the travelling didn't help along with trying to get a lot of stuff done before I left.
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Old 07-01-2007, 01:56 PM #10
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Geez, I almost hate to post on this thread in case I mess up my karma or something!!

I am sitting in my "mother-in law's" back yard basking in the sun and checking in on everyone. We are in Ilion, NY for our last scheduled wedding/shower/graduation (since May 1st!!). My sister in law married a bluegrass musician/pilot. ( or is it a pilot/bluegrass musician? both jobs are equally hard in my book!)

The wedding was yesterday. Everything was beautiful. It was here in the yard, with flowers everywhere, loads of Italian food ( these people are IRISH!!) a bluegrass band for the reception and all of my fiance's brothers and sisters here but one ( that would be 10 out of 11) along with respective spouses and children.

We camped out under the tent and just cleared our stuff away for the day. Everyone thinks we are nuts, especially with two kids with us! I swear it was about 55 degrees at night, with air mattresses and sleeping bags it was nice and cool, but they are all acting like it's polar weather and throwing blankets at us!!!

We went up to a lovely gorge and swam today, the water WAS freezing! We are off to a barbeque in an hour or so at one of the sibling's homes.

I actually feel GREAT. I helped strike huge tents and clean up all the wedding garbage, picked up the butts on the ground, watered the flowers, helped with breakfast and on and on and on and I am not even tired!!

I think the Tysabri is starting to work it's magic!!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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