Just reading this thread has proved what I've already known.....You all are a bunch of really strong ladies... :grouphug:

I have learned so much from you..

(choking...) yep...DM..would you be so kind as to ask AMN to remove her grasp from my throat?

Oh silly Taffy... AMN is just measuring you for a new scarf...

Right AMN??? AMN??? UH AMN???

Gee Taffy, you look good in purple.
Oh, and put your tongue back in your mouth... (some people have no manners)....

(thinking...right a new scarf....is she done yet)

(giving universal sign for choking)

Oh look..... Taffy knows sign language....

Awwww Cindy!
I "think" I understand what you must feel like. Although I am not as effected as you are, I have been very frustrated by the CRAB's. Whenever I've been off of them for any amount of time (when we were trying to get pregnant, or I was pregnant), I almost felt better or just as good from not having the side-effects of the interferons. The only medicine that I feel did anything for me was when I was in the "Antegren" trial, and it just so happened that I was getting the real thing. Now that we aren't actively trying to get pregnant, I think I'm going to go back on Tysabri. I feel like the other meds are like shooting water into my system, but then I suffer with the nasty side-effects and I don't feel like they're even helping me.

Whatever you decide to do, please know that we're all behind you in your decision. Whatever makes you feel best is the answer for you. This is a very frustrating disease, and for many of us hits us in our prime of our youth when we should be enjoying life as carefree young adults.

Try the LDN. I don't see what you have to lose. I just want you to know that I'm here for you whatever you decide to do.:hug:

(((((((((((CINDY)))))))))))

All the best to you now and always,
Chris

Thanks, Chris, I plan to try for the LDN when I finish a long trip in Sept. It may be psychosomatic, but I swear, it's only the 4th day with no shot, and I think I feel better! I'm not as fatigued as usual and it's even kind of warm here.

My legs feel a smidgeon lighter too, but I'm cautiously optimistic that this is just the beginning of feeling better every day.

Here's hoping!


...but my hands are so tired, I fear I may have to release Taffy... but... she likes blue, she said so!

Getting
 

Into the old lady age,i'm thinking there's always HOPE.. Now Cindy Taf
is turning blue :( nope :mad: nope that's :eek: awww poor Taf,
your going to love that whatever she's choking you for. ;) Sue

Cindy,

Glad to hear your feeling better. If it helps I have read many DMD user threads where they do better off the drugs than when they were on them.

Really makes you wonder about drugs that can make you do worse than the natural disease course :icon_eek:

Sure....I don't like blue that much! Your arms must be tired by now.

(Cindy releases Taf and lets the Smurf fall to the floor with a thud.)

With renewed strength AMN goes off to conquer the World!