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Old 01-29-2016, 09:11 AM #21
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Okay, just so I know I'm not losing my mind... common occurrence it is 2016 now right? So hopefully we'll have the results of the study soon. Gosh are my fingers crossed. I don't know how many more liquid torture shots I can manage to inflict on myself. Even if they aren't that great for the over all treatment of symptoms if something like biotin can fix my eyes since I can't take steroids oh HAPPY DAY!!!

Viva la France!!! (I knew that country had more going for it than simply wine and cheese )
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Old 02-15-2016, 11:23 AM #22
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Okay I am not taking a high dose of biotin at this time. However, I did often take biotin in the past since my nails have always been like paper. But after I ripped all ten finger nails in one day this past week and down to the quick, one past the quick. I picked up some more biotin, just planning on taking care of the nail issue.

The first day taking it, eh, nothing... second day taking it... same old, same old.... third day... hmmm I think I can actually see what's happening on the TV. Fourth day... no more buzzing sensation, and WOW I can almost see well enough to drive!!!! I feel better all over too. Not great mind you, but definitely better. Last night I actually managed to fall asleep at a normal time, and wake up in the morning, and not one of those begrudgingly okay okay I'm getting up in five.. no ten... make that twenty more minutes...

But woke up, stretched out and got out of bed. . I'm still dragging my left leg, my left hand still doesn't work for ****. But there's definitely some improvement, decidedly so in the vision area. I think the French might be on to something, or it's just one of those random MS coincidences. My fingers are so crossed that this study doesn't just turn to dust, and more so that my insurance might cover it... please let it be soon... But even if they don't, if the study shows any real promise, I might just cough up the $100 a month and take it, it can't be any worse than the Copaxone injections. And if 30mg can make me feel this much better, I can only hope that 100mg will make me feel at least the same if not better.

(BTW I'm taking Sundown Naturals vegetarian Biotin 10,000mcg 3 times a day. It's d-Biotin, with other ingredients vegetable cellulose for the capsule and contains less than 2% of silica and vegetable magnesium stearate.) So some fancy sand and salt with the pills. Since I haven't been to the beach yet this year, I think I can swallow some with the Biotin pills . I know I certainly end up swallowing far more than a few MG of both sand and salt when playing at the beach. And I only take the sundown's because it's cheap and vegetarian, not that I'm a vegetarian but I know where 'gelatin' comes from and just can't swallow it, I get enough from the rx pills but try very hard not to think about it.

I'm just blown away that this morning for the first time in a very long time, I was actually able to watch TV and not get dizzy from all the things moving around on the screen that the poor eyes were trying to keep up with. Even if I still choose not to drive, at least I can see where the car I'm in is going and keep track of all the other cars around me, that makes me feel a whole lot safer while being driven by other people.
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Old 04-19-2016, 02:10 AM #23
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Well that didn't last long . Today it is like someone pour milk into both my eyes. I can see them clearly if I get the mirror right up next to them and they're clear of any foreign objects, no sign of irritation or infection. Honestly they're as bright and clear as they ever are... at least until I start looking beyond a few inches in front of them. Then the milky haze begins to cover my field of vision.

And my peripheral vision is shot once more, not really surprisingly so, it seems to be that time of year again . But hey at least I'm starting to be able to time out when I get tunnel vision... but then again this milky vision is something else entirely new to me. Oh well, there's nothing the doctors can really do for me anyways, so I guess I'll just have to wait it out and see how long it takes to go away or welcome me to a world of white . Cross your fingers for me that it doesn't get any worse.
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Old 04-19-2016, 04:04 AM #24
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Starz I would definitely at least report this to my Neuro. Even if he can't "do" anything for it at least it will be documented. Eye stuff is scary.

Are you still taking the biotin?
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Old 04-22-2016, 06:34 AM #25
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Starznight, it might be an idea if you got a referral to an ophthalmologist.

Your eye problems may or may not be related to taking biotin but I think that getting checked out by an eye specialist is a good plan.

With care.
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Old 04-22-2016, 07:53 AM #26
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For some reason my Neurologists for MS are usually Neurological Ophthalmologists although I usually have no eye problems.. Wish you had one of these doctors. My first doctor was looking at use of Ophthalmologist machine that scans back of eye (where rods and cones are) to measure changes that indicates progression of MS. My present guy had done one done and found out I had Maculear Edema. Went to an Ophthalmologist. Problem resolved. Had they not been looking closely for MS progression might never had been found at such an early stage. Don't mess around with eye stuff. Most of my Neurological Ophthalmologists have been easy on the eyes too . I am in Johns Hopkins/Baltimore area (and University of Maryland Medical) and this service exists. From NY Metro area, again this exist in large quantities. May not be so easy to find in your area. (Maryland good for crabs, NJ/NY better for bagels, like that kind of)
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Old 04-26-2016, 02:05 AM #27
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Yes I'm still taking the biotin, and thankfully the white haze has gone away as suddenly as it appeared. My neuro does check my eyes when I see her, but not like a full eye examination. The biggest problem I have with an opthamologist is that my insurance doesn't cover it . Only if I had diabetes would they cover it, but not for MS. .

I did pay out of pocket once to see one, it wasn't a huge hit to the pocketbook but enough of one that I'd rather not have to do so again especially since my insurance premiums are up to $400 a month , 'tupid o'bamacare, not that I can complain since without it I'd probably still not have a dx.

But the opthamologist also wasn't that great of one, or rather didn't have any answers for me aside from the usual... hmmmrrrr.... well that's weird. I did a field vision test that showed abnormalities but not ones consistent with tunnel vision or the like, it was more sporatic vision in the different fields. They tested my depth perception and there were various points where I lost the perception but regained it as the objects moved further or closer. Absolutely no clue as to the issues of double vision and while the doubling/tripling of my vision interferes with my ability to see at a distance I can actually see 20/20 and have better than average near vision (I can read the very last line on the card without issue which given my age is good I guess) And my eyes have a delayed ability to track movement. All of which to the eye doctor added up to a big ... ummm... dunno... though my optic nerve was slightly swollen and enlarged, but otherwise everything else about my eyes themselves was perfectly healthy and normal. There was no problems with the blood vessels, no signs of deformity to the cornea, normal pupil dialation, they looked like perfectly healthy eyes from the physical exam with only the very slightest of slight astigmatisms. Of course that was about 4 years ago now, since then some of those issues have gotten worse and some have disappeared all together from my notice at least.

So my vision problems were chalked up to neurological misfiring of some sort. There was nothing at all wrong with the eyes physically, but neurologically they just don't seem to operate correctly. So I dunno... . I guess it's just one more of those things where I let the doctors shrug it off and I just learn to live with it. Especially since the treatment for such things is almost always to hit with steroids and that's something they can't do with me .

Such is life, good thing one of my favorite drinks in the world is lemonade .
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Old 05-08-2016, 08:44 AM #28
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My insurance does not pay for eye glass exams, etc, but ophthalmologists linked to a problem (medical) it does ,and not an eye-doctor at an eye exam place for glasses. I would go to an ophthalmologist who worked on problems. My insurance will not pay for elective things (plastic surgery for a bigger ...Nose, say or fertility treatments to have kids) but certainly uterine bleeding, medical problems. You don't want new glasses, you have vision problems but this is my insurance. Call yours.
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Old 05-11-2016, 08:14 PM #29
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My insurance only covers cateract surgery and eye problems resulting from diabetes. But not MS I already called about it, shame I don't have diabetes like all the doctors were hoping to diagnose me with before the MS diagnosis... shame the sugar levels showed more hypoglacemic than hyper... and no the insurance doesn't cover for eye problems resulting from too low of blood sugar either.

But the white veil, turned grey, nearly black... and then poof! like it never happened over the rest of the week.... grrrrr... I hate my eyes. They are always doing something silly and then it just disappears.... well sometimes, the doubling/tripling vision isn't going anywhere any time soon I don't think. Still taking the biotin though, can't say yea or nay on it helping, but it doesn't seem to be hurting and my nails are nice an strong and hair is looking better and growing out longer too.
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