I've only been through 5 so far but need to start looking for #6. Last one left the practice he was in right before Christmas. I've been dragging my feet because so many of them sucked.

Thanks for the early present Dr. A.

After my twins were born, a neurologist with broken English came in my room. From across the room he said "Mumble, mumble, your daughter, mumble, mumble, PALSY" and left. I'd just had a C-section, couldn't leave the bed. Alone and upset I laid there. Hours later a handsome man with golden hair and blue eyes came and said "She just has a pinched nerve. You're too little to be having twins!". Was he wearing cowboy boots under his scrubs?

Months later my pediatrician told me what I had already noticed. The babies' heads were not rounding out. "Other kids can be so cruel. There's always plastic surgery" she says. Again, my heart sank. Went to see cowboy neurologist. He is wearing cowboy boots under his jeans and dress shirt. Later he gives his opinion "Ain't nothing wrong with their melons. You're just too little to be having twins and they got squished." I am hopelessly in love, but he moves soon to Montana. That's what maverick cowboy neurologists do.

Later, looking for answers to my symptoms in a different state we had moved to, my GP sends me to a Neurological Ophthalmologist. "I can't find anything", he says "So I'll do magic tricks for you." So he did. He was just OK at that.

I've only been dx'ed since Aug '13. And I'm one neurologist number 3. First one was an idiot who tried to pawn it off as diabetes. Second one drove me nuts by suggesting that if PT didn't work as they kept crippling me further, that I might try going to the YMCA and taking some yoga classes... ah huh, so certified medical practitioners made things worse, but I'm suppose to entrust my body to a part time yogi.

My latest neuro, we can get along. My DH doesn't like her much because she doesn't talk down to his level. And she doesn't have a lot to offer. But then, I'm at the end of the line for medication to treat my symptoms, and I'm already taking a DMD. So she's kind of in the position of well... let's just keep an eye on things and hope you don't get worse not that there's anything we can do for you if you do... you can't take steroids like 99% of the rest of the pts.

She did however get me hooked up with my AFO, that I've been trying to get for years now. She also introduced me to a local support group for MS. And I am finally after all these years "disabled". Not that it does me any good after all these years to finally be "disabled" because I don't qualify for disability, but it will help me out down the road when my DH retires or if he should pass before I do. Even though they're changing the rules for spouses collecting the other's social security but I'm already the injured spouse, so the rules won't apply to me and I should be able to collect the entirety.

So there's a lot more she has done for me than my previous two neurologists. The first one only made me want to bit through my tongue so I wouldn't shout explicitives at him so I wouldn't find myself getting dx'ed with Tuerettes syndrome and the second one, really only gave me a pretty well known dx and a DMD rx.

I do believe every moment is OT/PT time. I try to live my life like that. I've done a little PT for students, certainly can expect it for myself. I do memory and logic stuff also. Push the envelope a little.

Sadly no matter what stage we are in I think you hit the nail on the head in that overall they really don't have much to offer us.

My dear, kind MS specialist looked like he was going to cry when I made a similar comment but at least for now I don't think there is really all that much more than the old whack a mole strategy when it comes to medications to help us.