I am back in the study as of Aug 30th. Did the 3-day IVSM, 30 day washout, and I got the "I am ok" sign off from my neuro here and it was faxed to the study doc.

Now we repeat vaccine visit number 4. I have to resign all the consent forms, etc.

Vaccine #4 on Aug 30th, and the schedule resumes from there. I guess I put quite a fly in the ointment so to speak!

But the LP I had definitely confirmed an exacerbation. It's really taken me almost a month to get back to my baseline. This one was bad, at least from my point of view. Still fighting fatigue, but I think that is due more to the hot hot hot weather we've been having and all the smoke in the air here. Idaho has over a million acres of land currently burning - we've had several red alert air quality days. The states smells like one big campfire. It's just been awful and I am trying to work --- :eek:

I will keep you all updated.

I'm going to pull something positive out of this no matter what. Yes it sucks that you had an exacerbation, but I think it's really cool that it took so long. You're normally on a quarterly schedule even on meds and you stretched out this one and got a lot more time b/w exacerbations. Yea Tovaxin. I can tell you are doing better, believe it too!

Greta's right, FG, that was a long stretch compared to before. You can't be on placebo. Now don't go ticking the study doc off again!:mad:

Greta and AMN are right. You guys can stop choking me now! No, they are right, seriously, you are doing much better!

*stomping away pouting & in a snit*

You're no fun!:mad:

Don't pick on Taffy, she's a nice person! She likes chocolate (did I say that???)

You guys are right, I got a whole 6 months, almost 7 since the last flare. I am not complaining. The less steroids I have to do, the better off I am!
;)
And I WILL NOT TICK OFF THE study doc anymore. Repeating that 100 times!

Where's DM to beat that into me??? :p

I'm proud of Ya, Cheryl and did I ever thank you for your pioneering for the rest of us? Well, Thanks!!

Changing subject, but I was just wondering if you talk to Andrea/spooky anymore? I wonder if that Utah mine cave-in is close to her? How is the little scamp...still doing well on Tysabri?

OK, back to our regularly scheduled Tovaxin stuff.:p

Thanks Sally!

To answer your other question, I hadn't heard from her in months, and then out of the blue about 2 weeks ago I got a short message from her and then no reply. So, I know absolutely nothing. The short message was nothing - just -- I found you, how are you doing -- told her I was ok, not lost, and how was she? Nothing further...so dunno...:confused:

Cheryl,

I'm glad you're feeling better and ready to have your next vaccine soon. I hope it will be smooth sailing for the rest of the trial. :)

:hug:

Thanks Wiz! I hope so too. It's been a tough go since mid-June.

How are you doing on Ty?