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-   -   Explaining MS (and other Fairy Tales) (https://www.neurotalk.org/multiple-sclerosis/235709-explaining-ms-fairy-tales.html)

Frog42 05-13-2016 07:52 PM

I used to enjoy going out but it's so difficult for me now I just don't want to.

My friends don't understand it which I kinda get but my neuro?? :mad: I wasn't at all sorry when he left the practice.

Kitty 05-14-2016 05:33 AM

Quote:

Originally Posted by Frog42 (Post 1211194)
My friends don't understand it which I kinda get but my neuro?? :mad: I wasn't at all sorry when he left the practice.

I know, right? You'd think out of everyone they'd understand.

I changed Neuro's several months ago and I don't miss my old Neuro one bit. He loved to tell me "MS is not a painful condition". :rolleyes::mad: OK, maybe not for you since you don't HAVE it but I will testify that it is painful sometimes. He had the gall to tell me once that people with MS have "convenient pain". :eek: I'm not going to argue with him or try to justify myself and my choices.

kicker 05-14-2016 01:31 PM

I like my neuro a lot. He won an award for humanitarianism and is considered a MS speciaist neuro at Johns Hopkins.
He also does Clinical research at an immune place. Yesterday when I saw him I thanked him for not being an @$$#%(& like some doctors I read about on NT. I know I'm very lucky. He's wonderful in that he doesn't think he can cure me and give me no false hope. So I can talk to him. He helps or refers me out.

Frog42 05-15-2016 02:33 PM

Kitty, I think my old neuro must have set up a practice with yours. :rolleyes:

tkrik 05-23-2016 07:21 PM

Why do neuros say that MS is not painful?!?!:mad: I've experienced that too. I have never heard anyone with MS say they never experienced pain due to their MS. I don't know where these doctors get that information that MS doesn't hurt. :confused::rolleyes:

bddouglas 05-24-2016 03:22 PM

I don't understand how a doctor can say that MS doesn't cause pain! I would just have to tell that doctor to spend a day in my shoes. I am so thankful that I have empathetic doctors. My neurologist was almost in tears when he told me I have MS. My primary care has told me to tell people to kiss my foot if they wanted to doubt my pain. I just feel truly blessed with my care team.


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