My neuro says my TN is not typical but to keep taking the Tegretol as needed.

It's gotten worse this past week and I've been taking the maximum dose. Makes me tired and even more off balance than I already am but I'll take it over the electric shock pain.

I have to eat only on the left side of my mouth and make sure my teeth on the right side don't touch. Makes for l-o-n-g mealtimes.

And forget using a straw. Any pulling I do with the muscles around my mouth sets it off big time. I have to drink very slowly on the left corner of my mouth.

Can't rub the right side of my nose or the right corner of my mouth without setting off fireworks of shocks that literally bring me to my knees. I am just soooo tired of all this.

And now I have another issue.....plantar fasciatis in my right foot. The whole right side of my body is messed up! Yet I just had an MRI and it was unchanged from the last one I had and no new lesions!! Wish I could be a little more excited about that.

Kitty,
I'm so sorry you are dealing with so much without even a break. I hope these upcoming appointments will resolve these issues and give you relief.

Gerry

Thank you, Gerry. It's been consistently one thing after another since the first of August. I'm tired.............

I have an old friend with MS and TN. She has had the surgery twice in the past but I think hers is still pretty bad. She no longer posts online though. She took Tegretol for hers too. Sometimes she would stop taking it because of the side effects but would start again when it flared up again. I hope this will subside for you soon.

Thanks, Wiz. I called my neuro and he increased the Tegretol to 3 pills (150 mg) twice a day. I hope it works.

It hurts to eat now even on the left side. Sometimes when I talk it hurts.

Wish I knew what causes it to flare up.