My daughter will be 25 in May. Early this year, our neurologist diagnosed her with NMO (Devic's Disease). About a year ago, he thought she had MS...she had lost complete feeling in her legs for a period of time and was unable to completely empty her bladder, her migraines were horrible, etc. She suddenly lost the vision in her right eye and our neurologist had her meet with UFHealth Jacksonville's MS Specialist for a 2nd opinion. That was when NMO was considered. Well, she called me at 2am this morning freaking out...she woke up to get something to drink and she couldn't see anything at all...I advised her to call EMS and request that they transport her to Brunswick. She called me at 5am to pick her up. All they did was give her a shot. She still has the migraine tonight and she is still completely blind. I called our neurologist and we are waiting on a return call. She is having a problem with urinary retention again.

I feel like I never go into remission. I am going to see what I can do with SS tomorrow to amend her SSI application to reflect total blindness. I am looking into resources to teach her life management skills as a blind person and I am going to try to help find her affordable housing closer to me and my son. Any ideas on the life management skills? Any suggestions would be welcome to help with my stress level.