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Old 03-29-2017, 04:42 AM #1
Starznight Starznight is offline
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Starznight Starznight is offline
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Join Date: Jun 2014
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Posts: 970
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Default Yet another trip to the doc needed

Ok, last time I went for my physical, my sodium levels were a little low, nothing to worry about, my glucose as always was also low (despite my candy habit and sweeter than sweet tooth, like there's no such thing ever as too sweet, but plenty of things that aren't sweet enough) but still... meh that's normal for me, and my blood was concentrated (high in neutrophils) all together fairly routine nothing jumping out especially.... but in the past month I have been craving salt, like adding sea salt to top ramen cravings, and candy habit has gotten a bit out of hand (all the Easter candy is gone and it's not even Easter yet). And if I stand at anything less than the slowest of slow paces it's instant ringing of the ears and world spinning wildly out of control.

Finally toss in the weight loss with half a pound of jelly beans and peeps in me a day and my great "tan" on life long whiter than white... so white it's practically clear skin, and all says to me it's time to head to the doctor to see if granny left me more than just some antique nativity sets. She had Addison's disease, and was about my age at the onset... that is something I really don't need with the body's aversion to synthetic cortisone, impending surgery, and MS as my little cherry on top.

This is the one time in life I'm praying it's something psycho semantic, or that I'm having a hypochondriac episode... something... anything but getting that particular disease from dear ol granny. She was otherwise healthy and still was a craptastic disease only mercy she had was it eventually damaged her heart to the point of no repair and she was able to pass away fairly peacefully after fighting for less than thirty years. But then again she had the same initial over production of cortisol and aversion to steroid treatments that I have had so this could be a good thing ... if I do have it, at least I might be able to take cortisone so they could actually treat any MS flares and the no doubt adrenal crisis that will follow along with it and if we go by a family history on living with disorders... I might only have to fight for only 20 more years so there's that.....

Still... I really hope I'm just being a little off-kilter even as I'm up all night because if I don't have a blanket I'm freezing to the point of turning blue, gooshflesh and teeth chattering, and if I'm snuggled under a blanket I'm way tooo hot and yet not running any sort of temperature 97.9 for the month, checked several times a day because I can't believe I'm not running a fever. I just need a new body. Anyone have some laying around that they aren't using?
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Old 03-29-2017, 09:25 PM #2
nemsmom nemsmom is offline
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Starsnight, I truly hope that you don't have Addison's! But, honestly, as I was reading your symptoms, before I got to your suspicion, Addison's is what came to mind.

My Mom was diagnosed with Addison's over 15 years ago. She had the extreme salt cravings, she would pour salt into her hand and eat it. She was never able to get tanned, then she suddenly had the darkest tan I'd ever seen, during the winter. She was also extremely nauseated, she lost a lot of weight because of it. She had extreme muscle pain. She was always cold, and it took 6 months to get a diagnosis. So by the time they figured it out she was almost too far gone. She could do nothing but sleep all day every day.

I really do hope this isn't the case for you, but I hope you get tested very soon.

Please let me know what the outcome of the test is, good luck!
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Old 06-09-2017, 12:39 AM #3
Starznight Starznight is offline
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Starznight Starznight is offline
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I completely forgot to repost about the results... it's borderline, my levels are at the cusp, but not past the line yet. Doctor discussed what all had been going on lately .... tons of pain, tons of stress, basically anything and everything that causes the body to pump out cortisol and suggested first and foremost that I stop stressing about things, can't do anything about the pain till I see the neurosurgeon for my baclofen pump, but stress I should let somethings go, like my house not being neat as a pin and my garden having weeds in it that I've yet to tackle again because of the heat.

So worked on learning to let things go a bit... not my strong suit but... working on it.... and I am feeling a little better most days. My levels will be checked again in a couple of months. The doctor is pretty much taking a "keep an eye out but don't worry about it" approach. They're aware of the possibility now, and regular doctor is connected to the hospital I use so if a crisis should occur it's in the records along with my blood tests showing borderline.

But as I said the doctors biggest thing was I need to stop as much as I can from causing my body to overproduce cortisol which then throws it into deficiency once the adrenal gland can no longer keep up...I've been giving it too much of a work out.
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