advertisement
Reply
 
Thread Tools Display Modes
Old 06-06-2017, 11:53 AM #1
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default How I Reversed MS - Palmer Kippola

Excellent 30 minutes of her story. I could see so much of my sister who just passed late last year after her long battle. STRESS stands out, As does Going GLUTEN free. I'm sure MANY of you know this, but good to hear Palmer's story.

How I Reversed Multiple Sclerosis - Palmer Kippola (Dec 2�16) - YouTube
caroline2 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-07-2017, 07:20 AM #2
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

I wish I had a dollar for every time I changed my diet (added to, took away from or tried specific recommended supplements).

While it might seem to work for some my belief is that they didn't actually have MS (lots of self diagnosis going on) and the positive dietary changes just made them feel better.

It's most condescending when someone announces that they have MS and just by tweaking their diet made it all go away.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
clarkstar (06-14-2017), Jappy (06-29-2017), kiwi33 (06-08-2017), Starznight (06-07-2017), tkrik (06-16-2017), TXBatman (06-13-2017)
Old 06-07-2017, 09:44 AM #3
Sparky10's Avatar
Sparky10 Sparky10 is offline
Senior Member
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Sparky10 Sparky10 is offline
Senior Member
Sparky10's Avatar
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Default

Ah, if it was only that easy to repair brain damage. I'm glad some people get relief of symptoms by changing their diet, or anything they can find.
__________________
RRMS, diagnosed '00

Everything will be alright in the end. If it's not alright, it's not yet the end.
Sparky10 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
clarkstar (06-14-2017), Jappy (06-29-2017), Starznight (06-07-2017), tkrik (06-16-2017)
Old 06-07-2017, 05:16 PM #4
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

I have a friend on another health group who commented on the Video and has seen it before. She says she did not get the official dx until 60, but a lot of symptoms for many years. She's avoided a lot of drugs and does a lot of supplements including LDN but mentioned the importance of T3. I know many who take synthroid T4 do not convert well to the T3, so I've heard. I personally take desiccated thyroid which has both T4 and T3 and other ingredients. I don't know what my sister took with any thyroid support.

My friend claims out of the FIGHT list her issues are more infections and hormones.

Here's a link she presented on the T3 and MS:

Triiodothyronine administration ameliorates the demyelination/remyelination ratio in a non-human primate model of multiple sclerosis by correcting ... - PubMed - NCBI
caroline2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
clarkstar (06-14-2017)
Old 06-07-2017, 06:24 PM #5
Starznight Starznight is offline
Member
 
Join Date: Jun 2014
Location: Georgia
Posts: 970
8 yr Member
Starznight Starznight is offline
Member
 
Join Date: Jun 2014
Location: Georgia
Posts: 970
8 yr Member
Default

I know I've posted before on things like diets, so I'll try and keep this short... first off, understand the disease itself, while it is unclear still exactly what causes it, what we do know about the disease is that it effects the mylenin sheath covering the nerves within the central nervous system, and for whatever reason those of us with MS effectively tells our immune system that this sheath is a threat so it attacks it. And just like stripping wires, the "copper" gets exposed and the sparks fly. It is this exposure of nerves that should otherwise be protected which causes the wide variety of symptoms from mild to severe and likewise inflammation as surround tissues are being affected from both the unusual nerve conductions as well as pressures from scar tissue from where the sheath has been destroyed.

A change in diet will not change our immune response, will not rewrite our immune systems and tell them that our mylenin sheaths aren't yummy little germs to be eaten. This doesn't mean that some folks won't feel a little better if they change their diets, or take a supplement... but that's really only IF in changing their diet or adding a supplement they are either removing an intolerance reaction on top of the MS or fulfilling something they otherwise are not obtaining from their diets. That with or without MS would have made them feel effects of problems stemming from either issue.

Gluten has been a hot topic in the world of nutrition, complete with at least 3 documentaries on Netflix concerning all the tales of woe surrounding it. The perils that will befall the masses just by touching it. It doesn't matter that it's been a part of the human diet since before the Fertile Crescent, and that combined with seafood, wheat was the second most important dietary addition we humans made to obtaining higher ordeal thinking by supplying our bodies with the necessary calories for our brains to expand and create the intricate nerve network which MS is out to destroy.

But as with all things there does exist allergies and intolerances. I can drink milk by the gallons, eat all the cheese and ice cream I want and never once need I concern myself with having any sort of issues afterwards... my DH can't. He can manage to eat a little bit of cheese and the harder more aged the cheese the better, but even just half a glass of milk leaves him doubled over in pain. He can tell you probably better than most that milk causes an inflammatory response in his body. On the flip side he can eat all the shrimp he likes, whereas just eating something that had touched anything containing shrimp puts me into anaphylaxis (severe and life-threatening inflammatory response).

Now if my husband hurts himself at work... pulls a muscle in his back let's say, and his body is already giving an inflammatory response to the injury, and he then eats his little bit of cheese that he normally can... guess what, the sore back becomes a very painful back. He's compounding the inflammatory response, thereby increasing his symptoms. Leave the cheese alone for a few days and he's right as rain as again same as anyone else without a lactose intolerance hurting themselves in a similar fashion. Eat the cheese and he delays his recovery by a few days to weeks...

Same thing with MS, since not all the symptoms are being caused directly by the "wiring short" but more indirectly by the inflammation resulting therefrom, ingesting things which cause an inflammatory response will increase symptoms, and removing foods from an individual's diet that cause inflammatory responses to the individual will decrease symptoms (to a point). But it's not really decreasing the symptoms of MS, it's decreasing the symptoms of additional inflammation on top of the MS. But even a healthy individual without MS would feel better by avoiding things which cause inflammatory responses within their bodies, and it's not the same thing for everyone.

Giving up gluten won't kill anyone, it may IF they have an intolerance to it, improve how they feel overall, but it won't cure a single thing (short of celiac disease which isn't really curing it just removing that which causes sufferers to have an immune-response same as any allergic reaction). Just like my avoiding shrimp isn't making me any less allergic to it, but likewise my immune system isn't responding to it, because it's not being exposed to it... I'm not cured from my anaphylactic shock response to shellfish, but my throat isn't closed up, my eyes aren't swollen shut, my lungs aren't inflamed and filling with fluid, because I'm not eating shellfish.

So take all those "diets" and "supplements" with a grain of salt (which salt by the way can increase inflammation when taken to excess but a single grain won't harm you) when they claim to "cure" something by taking away or adding one "superfood" to your body, and try to learn a little about what actually happens in the human body when exposed to the world at large or microscopic as the case maybe. And if desperate to help your symptoms no matter the disease, feel free to give it a whirl for seven days, if things seem better keep it up if you like, but never expect a miracle and for the love of all that is holy don't go around telling everyone it's a "cure", because it simply isn't nor will it work for everyone, just like not everyone suffers from liver failure because they drank alcohol or heart and lung disease from smoking cigarettes, or drops dead from a heart attack because they ate real butter and fried eggs. The majority of the time with so-called "bad things" less than half the population will actually suffer from exposure to them and less than half as many as that will find them to be life-threatening.

Everything in moderation, including moderation tends to be the best policy anyone can take in all matters of life.
__________________
Side Effects: may cause dizziness, drowsiness, bleeding from the brain, heart explosions, alternate realities, brain spasms, and in rare cases temporary symptoms of death may occur.
Starznight is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
clarkstar (06-14-2017), Jappy (06-29-2017), kiwi33 (06-08-2017), TXBatman (06-13-2017)
Old 06-07-2017, 06:54 PM #6
Starznight Starznight is offline
Member
 
Join Date: Jun 2014
Location: Georgia
Posts: 970
8 yr Member
Starznight Starznight is offline
Member
 
Join Date: Jun 2014
Location: Georgia
Posts: 970
8 yr Member
Default

Saw the second study after posting my response and PLEASE!!! Please please, don't mess around with thyroid medications trying to cure MS. The thyroid is a very important organ in the body which regulates all manners of things from our body temperature, to weight, heart rate, digestion, immune system...etc... it's almost as important as our brains and controls almost as much too... it is not something to mess around with and is very prone to easy and irreversible damage that can be life threatening.

The EAE which they give to mice and rats in labs is NOT MS, it only mimics mylenin damage similar to the damage found in those with MS. There is a million and one different ways in which they manipulate the little mousies after giving them the disease and less than 1% of the different manipulations will end up being viable for human studies. Rodents have a very simplistic brain structure, and an incredibly high metabolism, in other words a little bit goes a long way, but to increase it expidentially for human trials the greater majority of these manipulations would be fatal.

A large portion of the studies which show "remylenation" aren't seeking a "cure" for MS, but are done looking for links that may explain exactly what is "causing" MS. Know the cause, hopefully find the cure. Why does one twin get it and another doesn't, despite a fairly clear genetic influence on the disease... what is happening in the body's immune system to make it attack the mylenin sheath and just the mylenin sheath. So scientists manipulate other things in mice to see what if any involvement there maybe. Is it surprising at all that by over stimulating the thyroid gland there's a change in immune response? No... the thyroid helps to control our immune systems it would be more shocking if there wasn't... do they still have to play around with the little mousies to see that? Yep... we've come worlds away from thinking bathing would make us sick and should only be done once a month or less as far as our knowledge of human diseases goes... but we haven't figured out a whole lot beyond soap being good (when not used to excess) in the grand scheme of things medically.
__________________
Side Effects: may cause dizziness, drowsiness, bleeding from the brain, heart explosions, alternate realities, brain spasms, and in rare cases temporary symptoms of death may occur.
Starznight is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (06-08-2017), Jappy (06-29-2017), kiwi33 (06-08-2017), TXBatman (06-13-2017)
Old 06-08-2017, 06:33 AM #7
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

Starznight, I agree with what you have written.

Because of my day job I know a lot of immunology.

Auto-immune diseases are specially complicated, with a mixture of genetic and environmental risk factors. Also, it is common for any two people with the same clinical diagnosis to differ a lot in disease progression, the relative importance of inflammatory processes, responses to different treatment modalities, etc.

I doubt that there will ever be a single "magic bullet"cure for any auto-immune disease. In my view all that health professionals can try to do is to work with their patients as individuals, monitoring them closely and altering treatment modalities based on clinical evidence.
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (06-29-2017), Starznight (06-08-2017)
Old 06-08-2017, 11:06 AM #8
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

I just read thru Staqrznight's two posts and I KNOW most of you have done it all or a lot. There are new people entering the MS world all the time. And I suppose I'm still fighting the battle on behalf of Barbara and she's no longer here.

1. Whether Palmer Kippola had MS or didn't, I don't know. My sister didn't know FOR SURE for decades. Very early one doctor said "may be MS"...the others did not know...she was in her early 20's...they knew a lot less back then perhaps. She went on to work in her profession for many years, lots of stress, bad sleep patterns, and rich foods. She was on the GO for many years. And then it all hit her.


2. I gave her suggestions over the years like LDN, eliminating sugars/carbs and what I could do without being pushy and invasive on how she was dong her treatments. And talked about Grape Seed Extract and Pycnogenol and the IMMUNE SYSTEM. She had pneumonia quite a bit over the last couple decades... She never got on these antioxidants.


3. Combining so much of the information out there is key, I believe. It's certainly what I would do if I was challenged with MS, it's what I do with my health challenges which is MOSTLY arthritis.

4. I did a search on Integrative Approach to MS and found a lot of info. Maybe some of the newbies would want to do that.


5. I mentioned the doctors kept my sister hanging with the hope of Stem Cells and that was going on 10 yrs ago when she started talking about this. Hasn't happened, will it ever? I know the family asked that donations be given to the stem cell research of one of the doctors she saw in NYC.


Anyway, I can't let go YET on Fighting for My Sister and just putting stuff out there from my mind. There is so much info today on EVERYTHING....this study, that study, this research etc etc etc.

Peace Out ALL....C
caroline2 is offline   Reply With QuoteReply With Quote
Old 06-08-2017, 02:32 PM #9
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

Quote:
Originally Posted by Kitty View Post
I wish I had a dollar for every time I changed my diet (added to, took away from or tried specific recommended supplements).

While it might seem to work for some my belief is that they didn't actually have MS (lots of self diagnosis going on) and the positive dietary changes just made them feel better.

It's most condescending when someone announces that they have MS and just by tweaking their diet made it all go away.

Kitty - When I couldn't get pregnant people thought they were being positive, telling me just to relax.

Was that the problem, me not being relaxed? I was the problem?


It was suggested I adopt. That always made people pregnant.

Uh, no.

Through Science and medicine, here I am with 26 year old boy/girl twins. No, they not identical. Minute you took their diapers off you could see that!
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Blessings2You (06-09-2017), ger715 (06-08-2017), Jappy (06-29-2017), Starznight (06-08-2017)
Old 06-09-2017, 12:11 AM #10
Starznight Starznight is offline
Member
 
Join Date: Jun 2014
Location: Georgia
Posts: 970
8 yr Member
Starznight Starznight is offline
Member
 
Join Date: Jun 2014
Location: Georgia
Posts: 970
8 yr Member
Default

Kicker- they may not be identical, but I'm sure they're going to have identical reactions to the diaper comment .

C- I think we can all understand the devastation of losing a family member, and the desire to help when they are struggling with their health. However perhaps it's in the wording that I think kind of sets our back teeth on edge, I believe gluten has already been discussed on the boards before, as has grapeseeds, and reduced sodium I know for sure since my own doctor suggested it and I tried it and my sodium levels dropped wayyyyyy too far, just giving up table salt, not that they were high to begin with.

But even if you're just quoting what someone else called their video, book, or article as "reversing", "curing", "stopping" etc... it most likely going to get a bit of an inflamed response out of those of us who have the disease. And we are here to help the newly diagnosed, the as yet undiagnosed, and the long since diagnosed as well as their family members. For those of use long since diagnosed we may have tried a few things, or a lot of things, but as we've progressed along we've come to understand a lot about the disease, our doctors explain things, our physical therapists explain, heck even a lot of the pharmaceutical companies have people come out and explain, we learn far more about the human body, it's immune system and processes then I think any one of us ever really had a desire to learn.

And that makes those of us who have long since been diagnosed both a little "peeved" might be the word when we hear about such claims, but also highly protective over the newly diagnosed and those awaiting diagnosis and our family members. Those who haven't been thrust into the world of auto-immune and neuroscience by the disease yet. And the use of "cure", "reverse", "stop".... project unrealistic expectations and depending on the suggestion could even be harmful. We naturally hope that people will discuss anything they may read about on the boards with their doctor, but sometimes desperation makes us do crazy things. For some of us, we've had times where if someone told us burying a live chicken in front of our house would help (an old old folk remedy for insanity) we might look twice at the little chicks at tractor supply and wonder...

Suggestions are great, and greatly appreciated, but try to look beyond "worked for this person" and a bit more into the actual science behind why it may have worked. Because yes, if you have a gluten intolerance as well as MS, giving up gluten will also lessen some of the MS symptoms you're experiencing, not because gluten is causing your MS, you're not "reversing" anything, but because you're removing an additional inflammatory response, you're no longer pouring hot water over the burn so to speak.

Sorry to the mods if i overstepped on this one and sorry to C if I come off a bit "snarky?" Not trying to discount the suggestion as such, just the proclamation, while offering a bit of the science behind it all.
__________________
Side Effects: may cause dizziness, drowsiness, bleeding from the brain, heart explosions, alternate realities, brain spasms, and in rare cases temporary symptoms of death may occur.
Starznight is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (06-29-2017)
Reply

Tags
battle, free, gluten, story, stress

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 08:46 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.