Daily living vs. Slowing Progression???

msladyinca · 08-01-2007, 04:34 PM

Quote:

At this point in time, Tysabri is recommended for people who have failed at other proven and SAFER therapies. I am reluctantly impressed by it's track record (over this last year), but I think it is premature and irresponsible to recommend such a treatment to people who are new to treatment options.

I believe that it is highly reckless and irresponsible to promote incorrect information Re: Tysabri, as the correct recommendation for Tysabri by the FDA is: "it is generally recommended for patients who have had an inadequate response to, or cannot tolerate, any of the other disease-modifying therapies". http://www.nationalmssociety.org/sit...ds_natalizumab

Also, Tysabri is being prescribed as a first line and/or second line defense against MS.

Quote:

Our Neuro's have biases, that are NOT necessarily based on anything concrete. All of the CRABs have equal efficacy

Again, this is incorrect as Tysabri and the ABCRs differ substantially in efficacy. See the proven data: "The relapse reduction rates used were: TYSABRI was 67%, Avonex (Interferon beta-1a IM) 32%, Betaseron(R) (Interferon beta-1b) 34%, Copaxone(R) (glatiramer acetate) 29%, and Rebif(R) (Interferon beta-1a SC) 32%."

TYSABRI® Shows Reduction in Steroid Use/Hospitalizations & ABCR Comparison
http://http://www.elan.com/News/full.asp?ID=913012

Considering that there are over 14,000 MS patients currently on Tysabri therapy, with 300 patients being added weekly (with some of us receiving outstanding results), there is a distinct possibility that their neurologists believe the proven data on Tysabri (including the submitted three-year safety data), and not the inaccurate postings of same on a message board.

Quote:

I'd certainly recommend giving that [LDN] a go before trying Tysabri

Bethany, FYI... LDN is not an FDA approved drug for MS and it requires a prescription that needs to be filled at a "compound" pharmacy. Therefore it is my suggestion that you discuss your options for effectively treating your active MS with your treating MS doctor.

Whatever your decision, I wish you only the best and a speedy recovery from your current symptomatology.

Have a great week everyone.

Lauren

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