advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-31-2007, 03:03 PM #1
bethanylynn's Avatar
bethanylynn bethanylynn is offline
Junior Member
 
Join Date: Jul 2007
Location: Maryland
Posts: 17
15 yr Member
bethanylynn bethanylynn is offline
Junior Member
bethanylynn's Avatar
 
Join Date: Jul 2007
Location: Maryland
Posts: 17
15 yr Member
Default Daily living vs. Slowing Progression???

I've had NOTHING but problems since beginning Rebif.

I wobbled a bit when walking before rebif, but now my balance is GONE and I have to hold on for dear life before taking a step! I KNOW this is not progression of the MS, but part of the rebif BS. I was back to my old semi-wobble and comfortable sleeping during my "No More Shots, D*mmit!!" protest a few weeks and stopped the shots for 3 weeks.

After ONE effing shot, it is ALL back... the spasticity (spelling??? Help!), the relentless RLS, my inability to walk to my bathroom without falling over...

My neuro and the MS specialist at Johns Hopkins said that rebif was the best treatment for me...but how in the h*ll do I function daily like this? The MS doc said I might be a candidate for tysabri (spell help again!??!! ), but I certainly DON'T want to start something new and be worse off than I am with the rebif!

In general, how do you weigh functioning competently today with keeping the ol' MS monster at bay?

Bethany
__________________
Courage is doing what you're afraid to do. There can be no courage unless you're scared.
.

Eddie Rickenbacker (1890 - 1973)
bethanylynn is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Progression of PD and URATE levels ZucchiniFlower Parkinson's Disease 0 07-13-2007 07:11 PM
This bloody progression! AfterMyNap Multiple Sclerosis 34 05-22-2007 08:33 AM
Is this progression? Adastra Peripheral Neuropathy 5 12-31-2006 01:54 AM
"The greatest improvement occurred in activities of daily living," Stitcher Parkinson's Disease 1 09-01-2006 07:46 AM


All times are GMT -5. The time now is 01:27 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.