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07-31-2007, 03:03 PM | #1 | |||
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I've had NOTHING but problems since beginning Rebif.
I wobbled a bit when walking before rebif, but now my balance is GONE and I have to hold on for dear life before taking a step! I KNOW this is not progression of the MS, but part of the rebif BS. I was back to my old semi-wobble and comfortable sleeping during my "No More Shots, D*mmit!!" protest a few weeks and stopped the shots for 3 weeks. After ONE effing shot, it is ALL back... the spasticity (spelling??? Help!), the relentless RLS, my inability to walk to my bathroom without falling over... My neuro and the MS specialist at Johns Hopkins said that rebif was the best treatment for me...but how in the h*ll do I function daily like this? The MS doc said I might be a candidate for tysabri (spell help again!??!! ), but I certainly DON'T want to start something new and be worse off than I am with the rebif! In general, how do you weigh functioning competently today with keeping the ol' MS monster at bay? Bethany
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