advertisement
Reply
 
Thread Tools Display Modes
Old 12-14-2017, 12:07 AM #1
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default New steps in treating MS

I thought that this was interesting New Inroads Against Multiple Sclerosis | Demyelinating Disorders | JAMA | The JAMA Network .
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (12-14-2017)

advertisement
Old 12-14-2017, 06:00 AM #2
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Thank you for this, Kiwi! I have been researching this particular MS med but my neurologist says he's not going to approve it for me. I'd like to give it a try but he says he feels it's not a safe med for me. Hence the research I'm doing on it on my own.

I sort of feel it's worth a try....I mean the alternative is what? MS that continues to get worse? What have I got to lose?
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kiwi33 (12-14-2017)
Old 12-14-2017, 06:59 AM #3
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

Kitty, I really hope that you can convince your neurologist to approve it for you. This general information, which I have taken from its Australian supplier, might help you with this http://www.guildlink.com.au/gc/ws/ro...=rococrev10717

With my day-job hat on (immunology among other things) it looks like a very major step forward to me.

For what it is worth it has been approved by the TGA (similar to the FDA) here.
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (12-14-2017)
Old 12-14-2017, 09:31 AM #4
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by kiwi33 View Post
Kitty, I really hope that you can convince your neurologist to approve it for you. This general information, which I have taken from its Australian supplier, might help you with this http://www.guildlink.com.au/gc/ws/ro...=rococrev10717

With my day-job hat on (immunology among other things) it looks like a very major step forward to me.

For what it is worth it has been approved by the TGA (similar to the FDA) here.

Thank you for this! I'm asking my son to print these out so that I can take to my Neurologist. It's so aggravating that he won't give me a script for this med.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kiwi33 (12-15-2017)
Old 12-19-2017, 09:33 PM #5
Jappy's Avatar
Jappy Jappy is offline
Senior Member
 
Join Date: Oct 2007
Location: Kentucky
Posts: 1,477
15 yr Member
Jappy Jappy is offline
Senior Member
Jappy's Avatar
 
Join Date: Oct 2007
Location: Kentucky
Posts: 1,477
15 yr Member
Default

Quote:
Originally Posted by Kitty View Post
Thank you for this! I'm asking my son to print these out so that I can take to my Neurologist. It's so aggravating that he won't give me a script for this med.
Kitty this is the med I tried earlier this year and had the terrible reaction where I was rushed to the ER because my BP went sky high again from it. After talking with my neuro, he said NO MORE! OCREAVUS is the short name. I have now tried 4 different meds and the side effects from each was bad. My body just won't accept these poison meds they keep trying on us.
Jappy is offline   Reply With QuoteReply With Quote
Old 12-20-2017, 04:08 AM #6
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by Jappy View Post
Kitty this is the med I tried earlier this year and had the terrible reaction where I was rushed to the ER because my BP went sky high again from it. After talking with my neuro, he said NO MORE! OCREAVUS is the short name. I have now tried 4 different meds and the side effects from each was bad. My body just won't accept these poison meds they keep trying on us.
Good grief, Jappy! I'm glad you're OK. My neuro mentioned something about BP in his conversation about why he won't approve it. Maybe it's because I have a history of HBP. I guess I have to accept his decision.....after all he is the doctor.

I found your two posts about your first and second infusion (in The Stumble Inn) and you had a had time with both. I'm so sorry. It's such defeated feeling when the side effects are worse than the disease.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (12-20-2017)
Reply

Tags
steps, treating

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Treating AN symptoms vs. treating the underlying disease Starburst Peripheral Neuropathy 7 08-30-2016 11:09 AM
next steps? supernova_krose Spinal Disorders & Back Pain 8 12-14-2014 04:32 PM
steps razzle51 Arnold Chiari Malformation & Syringomyelia 0 03-02-2012 10:46 AM
3 steps backwards gramE Sanctuary for Spiritual Support 3 03-07-2011 02:29 PM
The concertmaster steps down BobbyB ALS News & Research 0 09-06-2006 08:06 AM


All times are GMT -5. The time now is 03:10 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.