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Old 12-14-2017, 12:07 AM #1
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Default New steps in treating MS
I thought that this was interesting New Inroads Against Multiple Sclerosis | Demyelinating Disorders | JAMA | The JAMA Network .
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Old 12-14-2017, 06:00 AM #2
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Thank you for this, Kiwi! I have been researching this particular MS med but my neurologist says he's not going to approve it for me. I'd like to give it a try but he says he feels it's not a safe med for me. Hence the research I'm doing on it on my own.

I sort of feel it's worth a try....I mean the alternative is what? MS that continues to get worse? What have I got to lose?
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Old 12-14-2017, 06:59 AM #3
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Kitty, I really hope that you can convince your neurologist to approve it for you. This general information, which I have taken from its Australian supplier, might help you with this http://www.guildlink.com.au/gc/ws/ro...=rococrev10717

With my day-job hat on (immunology among other things) it looks like a very major step forward to me.

For what it is worth it has been approved by the TGA (similar to the FDA) here.
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Old 12-14-2017, 09:31 AM #4
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Originally Posted by kiwi33 View Post
Kitty, I really hope that you can convince your neurologist to approve it for you. This general information, which I have taken from its Australian supplier, might help you with this http://www.guildlink.com.au/gc/ws/ro...=rococrev10717

With my day-job hat on (immunology among other things) it looks like a very major step forward to me.

For what it is worth it has been approved by the TGA (similar to the FDA) here.

Thank you for this! I'm asking my son to print these out so that I can take to my Neurologist. It's so aggravating that he won't give me a script for this med.
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Old 12-19-2017, 09:33 PM #5
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Thank you for this! I'm asking my son to print these out so that I can take to my Neurologist. It's so aggravating that he won't give me a script for this med.
Kitty this is the med I tried earlier this year and had the terrible reaction where I was rushed to the ER because my BP went sky high again from it. After talking with my neuro, he said NO MORE! OCREAVUS is the short name. I have now tried 4 different meds and the side effects from each was bad. My body just won't accept these poison meds they keep trying on us.
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Old 12-20-2017, 04:08 AM #6
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Kitty this is the med I tried earlier this year and had the terrible reaction where I was rushed to the ER because my BP went sky high again from it. After talking with my neuro, he said NO MORE! OCREAVUS is the short name. I have now tried 4 different meds and the side effects from each was bad. My body just won't accept these poison meds they keep trying on us.
Good grief, Jappy! I'm glad you're OK. My neuro mentioned something about BP in his conversation about why he won't approve it. Maybe it's because I have a history of HBP. I guess I have to accept his decision.....after all he is the doctor.

I found your two posts about your first and second infusion (in The Stumble Inn) and you had a had time with both. I'm so sorry. It's such defeated feeling when the side effects are worse than the disease.
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