advertisement
Reply
 
Thread Tools Display Modes
Old 09-21-2018, 08:56 AM #1
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default LDN - Finally!

My new Neurologist gave me a prescription for LDN!! I could hardly believe it!

I wanted to give him a big hug but didn't want to scare him! LOL!

I had taken LDN for a long while several years ago but had to stop when I had surgery. The doctor I was getting it through retired while I was off of it so I never went back on it. It's hard to find a neurologist that will prescribe it.

I've been on a 3.0 mg dose now for about a week and i'm beginning to see and feel the difference again. I was on a 4.5 mg dosage when I stopped taking it before and feel like I could probably bump up to that again. I'm not sure what the max dosage is for LDN but 4.5 was what I was taking when I stopped before. I'm just excited to be back on it again.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
caroline2 (11-13-2018), ger715 (09-24-2018), Jappy (09-30-2018)
Old 09-21-2018, 06:03 PM #2
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

I hope that LDN continues to work well for you .
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (09-24-2018), Kitty (09-21-2018)
Old 09-30-2018, 05:11 PM #3
Jappy's Avatar
Jappy Jappy is offline
Senior Member
 
Join Date: Oct 2007
Location: Kentucky
Posts: 1,477
15 yr Member
Jappy Jappy is offline
Senior Member
Jappy's Avatar
 
Join Date: Oct 2007
Location: Kentucky
Posts: 1,477
15 yr Member
Default

Quote:
Originally Posted by Kitty View Post
My new Neurologist gave me a prescription for LDN!! I could hardly believe it!

I wanted to give him a big hug but didn't want to scare him! LOL!

I had taken LDN for a long while several years ago but had to stop when I had surgery. The doctor I was getting it through retired while I was off of it so I never went back on it. It's hard to find a neurologist that will prescribe it.

I've been on a 3.0 mg dose now for about a week and i'm beginning to see and feel the difference again. I was on a 4.5 mg dosage when I stopped taking it before and feel like I could probably bump up to that again. I'm not sure what the max dosage is for LDN but 4.5 was what I was taking when I stopped before. I'm just excited to be back on it again.
Wish I could get my neuro to subscribe it for me. The dr. I had before did now this one is xxxxxx!!! He put me on 5 different meds, had terrible side effects, but he still won't give in.
Jappy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (09-30-2018)
Old 09-30-2018, 09:51 PM #4
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Jappy, there are mail order places that will mail it to you. They have a list of doctors that you'd just have to have a phone consults with. Let me see if I can find the listing.

Schedule an Appointment - LDN Doctor
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (10-01-2018)
Old 10-01-2018, 07:17 PM #5
Jappy's Avatar
Jappy Jappy is offline
Senior Member
 
Join Date: Oct 2007
Location: Kentucky
Posts: 1,477
15 yr Member
Jappy Jappy is offline
Senior Member
Jappy's Avatar
 
Join Date: Oct 2007
Location: Kentucky
Posts: 1,477
15 yr Member
Default

Kitty I looked up the doctors on the site you gave, and the cost to just talk to the dr. is very high and that does not include the cost for LDN.

I just hope I can find a new neuro that will give me the script.

Thanks for your help.
Jappy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (10-02-2018)
Old 10-02-2018, 06:53 AM #6
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

I now, Jappy.......they make it nearly impossible to afford it. Finding a doctor who will prescribe it is the key. I was shocked that my Neuro agreed to prescribe it! He is a new doctor to me and I just mentioned that I had good success with LDN several years ago and he said "well, let's give it another try". I thought I had heard him wrong until he gave me a prescription!! I found a compounding pharmacy somewhat nearby and the script is $50 a month. Sort of expensive but I want to give it another chance.

I hope you can find a doctor that will prescribe it for you. Why does everything have to be such a struggle? It won't hurt these doctors to prescribe it.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (10-02-2018)
Old 10-02-2018, 07:04 PM #7
Jappy's Avatar
Jappy Jappy is offline
Senior Member
 
Join Date: Oct 2007
Location: Kentucky
Posts: 1,477
15 yr Member
Jappy Jappy is offline
Senior Member
Jappy's Avatar
 
Join Date: Oct 2007
Location: Kentucky
Posts: 1,477
15 yr Member
Default

I wish some of these drs. could be in our shoes!!!
Jappy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (10-03-2018)
Reply

Tags
dosage, feel, ldn, stopped, taking


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
finally smyles12 Bipolar Disorder 5 07-20-2013 08:19 PM
Finally getting some help! SpaceCadet Traumatic Brain Injury and Post Concussion Syndrome 3 10-30-2011 12:43 AM
Finally went to the dr. kentucky_wildchild Multiple Sclerosis 6 10-04-2009 04:29 AM
Finally did it. karousel Multiple Sclerosis 20 09-19-2009 12:23 PM
Finally! erinhermes Myasthenia Gravis 9 03-09-2009 05:47 PM


All times are GMT -5. The time now is 06:37 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.