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03-26-2019, 09:15 PM | #1 | |||
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Kitty, did it ever come through for you? From what i can tell, almost 3 months from your last post...that's a long time to wait!
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PPMS Rx 2013, symptoms since 2000 |
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"Thanks for this!" says: | Grammie 2 3 (03-27-2019), Kitty (03-28-2019) |
03-27-2019, 07:48 PM | #2 | ||
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Kitty,
I read where you said you would be sure to post when you started it but, I hope you have started the med and are doing o k. Linda |
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03-28-2019, 08:43 AM | #3 | |||
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Wisest Elder Ever
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Quote:
Quote:
I'm sorry for not responding sooner. I'm having a bout with Optic Neuritis right now and my left eye is blurry. I haven't started the Ocrevus yet. Not sure if I ever will. The insurance company approved the IV meds but then decided it needed a "Letter of Medical Necessity". Does this sound backwards to anyone but me? Why approve the IV if you need a letter explaining why it's needed? I called Humana about it but the girl I got on the phone didn't know. Ugh.......... If I EVER get to start it I'll let ya'll know. Don't hold your breath, though.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: |
03-30-2019, 08:10 PM | #4 | ||
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Kitty,
I am so sorry you are still waiting ..disgusting! I hope your Dr. gets that letter to Humana ASAP. I want a med called Amantadine. I have emailed my doc and now, left a paper for him with the receptionist, where I found out he now only works Tues/Wed I need it at a higher dose than normal, as I learned in a study it helps walking. I hope I don't have to do more after Tues BUT, I will. I want this med !! Think good thoughts for me Linda |
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04-02-2019, 12:35 PM | #5 | |||
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Wisest Elder Ever
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I hope you can get Amantadine without too much trouble on your part.
I've heard of it but didn't know it helped with walking. I'd always thought it was a fatigue med. I take Modofinil (Provigil) for fatigue and it really works well for me. I hope you get it soon and that it works well for you. Keep us posted!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | Grammie 2 3 (04-05-2019) |
04-05-2019, 11:28 AM | #6 | ||
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Hi Kitty,
Thanks ! I did get it and started it yesterday. I will keep you all posted Linda |
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"Thanks for this!" says: | Kitty (04-05-2019) |
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