Reply
 
Thread Tools Display Modes
Old 05-23-2020, 06:34 PM #1
jesxes jesxes is offline
Junior Member
 
Join Date: May 2020
Posts: 6
jesxes jesxes is offline
Junior Member
 
Join Date: May 2020
Posts: 6
Default 7 week demyelinating flare-up

is it too late to treat a 7 weeks old mainly pure sensory demyelinating flare-up with 1 gr IV corticosteroids?
jesxes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
agate (05-24-2020)
Old 05-24-2020, 12:43 AM #2
agate's Avatar
agate agate is offline
Member
 
Join Date: Aug 2006
Location: Wild West
Posts: 582
10 yr Member
agate agate is offline
Member
agate's Avatar
 
Join Date: Aug 2006
Location: Wild West
Posts: 582
My Mood: 7 week demyelinating flare-up
10 yr Member
Default

According to this WebMD article, steroids to treat MS flares should be started within 14 days after symptoms begin, and so it probably isn't too late.

IV Steroids for MS Flare-Up Treatment: Effectiveness and Side Effects

Your doctor should be able to guide you in this. There may be reasons why steroids should or should not be used this time. I hope you have a competent doctor.
__________________
Repeal the law of gravity!

MS diagnosed 1980.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10.
agate is offline   Reply With QuoteReply With Quote
Old 05-24-2020, 11:53 AM #3
Snoopy's Avatar
Snoopy Snoopy is offline
Magnate
 
Join Date: Sep 2006
Posts: 2,268
10 yr Member
Snoopy Snoopy is offline
Magnate
Snoopy's Avatar
 
Join Date: Sep 2006
Posts: 2,268
10 yr Member
Default

Hi jesxes and welcome to NeuroTalk

After reading your previous posts your Drs. haven't figured out what is causing your symptoms, is that correct?

In the case of Multiple Sclerosis sensory symptoms are not typically treated with steroids. These types of symptoms can come and go all on their own. Steroids may or may not help symptoms and they come with serious side effects.

It is best to consult with your Drs. for the most accurate information based on your individual situation.
__________________
Dx RRMS 1984
Snoopy is offline   Reply With QuoteReply With Quote
Old 05-24-2020, 11:32 PM #4
jesxes jesxes is offline
Junior Member
 
Join Date: May 2020
Posts: 6
jesxes jesxes is offline
Junior Member
 
Join Date: May 2020
Posts: 6
Default

Well, I had MRI's on my head and back last Friday, with contrast, and they discovered 5 lesions in my brain and 3 down my spine, so the presentation fits with a probable debut of MS, but as it began down on my feet and then went up to my legs and trunk, it took several weeks discarding sciatica, diabetes, and together with the system collapsed due to covid situation, it's been 7 weeks to reach a demyelinating Dx, that's what I was asking if 7 weeks after the onset was ok or too late...

I'll have a spinal tap this week to rule things out, I'm a male, 31 years old.

At least my anxiety and head is more stable, now that things are clear. I suppose I will be prescribed more treatment if the IVMP don't make any improvemnt this week.

Thank you for your responses!
jesxes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
agate (05-25-2020), Snoopy (05-25-2020)
Old 05-25-2020, 12:42 AM #5
agate's Avatar
agate agate is offline
Member
 
Join Date: Aug 2006
Location: Wild West
Posts: 582
10 yr Member
agate agate is offline
Member
agate's Avatar
 
Join Date: Aug 2006
Location: Wild West
Posts: 582
My Mood: 7 week demyelinating flare-up
10 yr Member
Default

Not exactly news you wanted to hear, I'm sure, jesxes.

I'm so sorry you seem to have MS. Waiting 7 weeks between onset of symptoms and a diagnosis is almost fast though. Some people wait for years, even 10 years, going from one doctor to another, before a firm diagnosis of MS.

The doctor may want you to start soon on one of the DMDs (disease-modifying drugs). You might want to read up on those if you're not already familiar with them because there are quite a few of them available now.

Best to take it one day at a time, jesxes. Hope you'll let us know what's happening with you.
__________________
Repeal the law of gravity!

MS diagnosed 1980.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10.
agate is offline   Reply With QuoteReply With Quote
Old 05-25-2020, 10:00 AM #6
Snoopy's Avatar
Snoopy Snoopy is offline
Magnate
 
Join Date: Sep 2006
Posts: 2,268
10 yr Member
Snoopy Snoopy is offline
Magnate
Snoopy's Avatar
 
Join Date: Sep 2006
Posts: 2,268
10 yr Member
Default

Hi jesxes and sorry about the possibility of MS.

You and your Neurologist can decide if trying steroids (IVSM) is a good option for you.

Unfortunately, steroids are not a cure all for symptoms and it is possible for symptoms to resolve on their own. Many with MS learn to live with some symptoms

It took 3 months for me to be diagnosed (PCP, referral to Neurologist, testing, diagnosis). During the entre time I was in an acute exacerbation(relapse, attack). After diagnosis I was given a prescription for oral steroids. It took 6 weeks to see any improvement and a year for recovery which included trying to regain mobility. I was diagnosed at the age off 23.

Take care.
__________________
Dx RRMS 1984
Snoopy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
agate (05-25-2020)
Reply

Tags
corticosteroids, demyelinating, flare-up, pure, sensory

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Neuroprotective therapies for MS and other demyelinating diseases olsen Multiple Sclerosis 0 05-08-2016 08:25 AM
demyelinating ? IllPn Peripheral Neuropathy 6 03-12-2014 06:59 PM
chronic inflammatory demyelinating polyneuropathy edwards29 Movement Disorders 0 01-29-2011 03:55 PM
Demyelinating Polyneuropathy tishcain Peripheral Neuropathy 2 12-29-2007 07:56 PM
Peripheral vs Demyelinating Neuropathy gerrym Peripheral Neuropathy 39 07-23-2007 01:28 AM


All times are GMT -5. The time now is 12:33 AM.

Powered by vBulletin • Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.