advertisement
Reply
 
Thread Tools Display Modes
Old 09-18-2020, 06:26 PM #1
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default

Hi All,
I was dx 32 years ago. I am doing well considering. I've been infused with Tysabri for 14 years.. it's been a G-d send for me.
Linda
Grammie 2 3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
agate (09-18-2020), Bearygood (08-13-2021)
Old 10-07-2020, 10:21 AM #2
poochie poochie is offline
Member
 
Join Date: Jan 2009
Posts: 129
15 yr Member
poochie poochie is offline
Member
 
Join Date: Jan 2009
Posts: 129
15 yr Member
Default

My neuro said she would have to consider my age before taking any injections. 74 yrs old
poochie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
agate (10-07-2020)
Old 10-07-2020, 10:45 AM #3
agate's Avatar
agate agate is offline
Senior Member
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,009
15 yr Member
agate agate is offline
Senior Member
agate's Avatar
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,009
15 yr Member
Default

Thanks for mentioning this, poochie! It's nice to know that age is a factor being considered by the neuros.

I gave up on Copaxone about 8 years ago. A couple of times in recent years, a neuro has suggested an injectable or infusible MS drug, and I've always said I'd like to skip it because I'm so old by now that I don't think much is known about how these drugs affect people my age--who do tend to react differently to drugs compared to younger people.
__________________
Repeal the law of gravity!

MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24
agate is offline   Reply With QuoteReply With Quote
Old 08-09-2021, 10:17 PM #4
Ann N. Ann N. is offline
Newly Joined
 
Join Date: Oct 2020
Location: Little Rock, Arkansas
Posts: 3
3 yr Member
Ann N. Ann N. is offline
Newly Joined
 
Join Date: Oct 2020
Location: Little Rock, Arkansas
Posts: 3
3 yr Member
Default

I'm back after several months!

I received a diagnosis of "probable MS" in 1981 and have had few relapses since. I do wonder if there's a connection between aging and MS relapsing, as I've noticed small things that could be just getting older not MS. I also wonder about the connection between stress and MS. The last two years have been a horror show, and things showed up again. I'm doing better now, thank goodness. I have never taken drugs aside from migraine medicine and have decided to ride it out at this stage.
Ann N. is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
agate (08-10-2021)
Old 08-10-2021, 10:02 AM #5
agate's Avatar
agate agate is offline
Senior Member
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,009
15 yr Member
agate agate is offline
Senior Member
agate's Avatar
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,009
15 yr Member
Default

Welcome back, Ann N!

You've brought up two issues that are big questions for me too--the connection between stress and MS, and how to know if problems you're having are due to "just aging" or to MS.

For me there is a very clear problem with stress, especially now that I'm older and have had MS for over 40 years. I find it increasingly hard to tolerate stress, even types of stress that would have rolled off me years ago.

The aging question can be handy in a way. When a symptom or a pain comes along, I tend to chalk it up to aging and shrug and try to work around it or hope it will go away eventually. That way I don't have to worry about whether the MS is getting worse.

The chances are that it's getting worse. That's one thing it's known to do. But I've been lucky so far because it's been very slow about getting worse for me. It's still been a very rocky road but not nearly as rocky as some people have.

I see that I posted in this thread less than a year ago. I should update that information by mentioning that in December 2020 I went back onto Copaxone--this time in the generic form and with a shot only 3 times a week instead of daily. I don't know how helpful it will be for me at this point but I wanted to do what I could.

You have a lot of stress in your life, I'm sure. I hope that you can think of ways to cope so that you can get through the bad times. If you have MS for a while you almost have to find ways of getting around it so it won't act up.
__________________
Repeal the law of gravity!

MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24
agate is offline   Reply With QuoteReply With Quote
Old 08-13-2021, 08:41 AM #6
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Default

A few of us around here are also "riding it out", myself included. Good luck to you!
Bearygood is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
agate (08-13-2021)
Reply

Tags
diagnosed, muscle, pain, started, walking


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
5 + years & every day is different Living_Dazed Traumatic Brain Injury and Post Concussion Syndrome 5 05-05-2018 08:39 PM
Stephen Hawking, Given Two Years to Live in 1963, Is Going To Space Over 50 Years Lat MuonOne ALS News & Research 0 03-26-2017 03:45 PM
new years!!!! bizi Bipolar Disorder 21 01-08-2012 12:41 PM
Misdiagnosed for Years...Sufferers can have illness for years before knowing it Stitcher Parkinson's Disease 0 10-26-2007 11:07 AM
Years... colombiangirl1 Creative Corner 1 02-25-2007 12:49 PM


All times are GMT -5. The time now is 05:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.