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Old 07-22-2021, 05:37 PM #11
Bearygood Bearygood is offline
Join Date: Jan 2008
Posts: 965
10 yr Member
Bearygood Bearygood is offline
Join Date: Jan 2008
Posts: 965
My Mood: At a loss
10 yr Member

Originally Posted by Tinadyke View Post
Thank you all for your replies. Yes I was wondering about the ct scan myself. From everything I've read they only use mri's of the brain. I will mention this when I go back. I also just came from my optometrist ( he use to be a family doctor)on a follow up from having weak eye muscles, and he told me that sometimes you can have an mri and nothing will show up and do it again in 6 months and there are lesions. He said if I'm having lhermitte's sign there is definitely something causing it. Unlike my neuro who said it just happens to some people for no reason. Think I may just get a new neurologist because I can tell he's soon going to give up on me.
Hi there, Tinadyke. Echoing what others have said, you really need to see an MS Specialist and get MRIs of both your brain and probably optic nerve as well. And with all due respect to your family optometrist, you might want to find a good neuro-ophthalmologist. This doctor was key for me in both my diagnosis and in helping determining my path forward. I was dxed simply because I had ON -- no other symptoms besides what comes along with that but the way my brain MRI lit up, you'd think that was hardly the case!! This is one of the things that makes this illness so difficult, it is often not black and white, some people are very symptomatic with little or nothing showing on an MRI and then there are people like me.
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