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11-25-2022, 10:27 AM | #1 | ||
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Junior Member
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Thanks for the suggestions. It may not of been clear from my post, but I have actually not been going to the Dr's on a regular basis, so no need to take a rest from them I tend to visit a neurologist when I have an attack / episode, have the tests, then just stay away until the next attack and try to live a normal life.
I have not visited a Dr for the past 1.5 years. I had an attack a month ago, but decided not to go. I am just praying the symptoms will slowly disappear, as they have in the past. Although after each attack, I feel as if I never recover 100% (but enough to carry on living my life as normal) I have a very clear list and record of symptoms (have been doing that for 10 years!), which have also been recorded by the doctors on each event. |
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11-25-2022, 03:59 PM | #2 | |||
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Senior Member
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Comeonthen, I'm glad you've already been keeping a record and providing the doctors with it. It sounds as if they've been willing to use that record and haven't just ignored it, and that definitely looks as if they're at least taking your symptoms seriously.
I looked back over your previous posts and found that in 2015 you mention having had several MRIs, and you mention having seen more than 12 doctors over the past 3.5 years. Given that record of so many visits to doctors, I thought it might be time to try something different for a while, but you've already tried my suggestion. Now here's another: In 2018 you mention that you had a single-fiber EMG test with abnormal results--twice, pointing to asymptomatic MG. You also mention that you didn't try the pyridostigmine the doctor suggested. Since this diagnosis or pre-diagnosis of MG is the only clear finding you seem to have had so far, why not return to the doctor who was willing to prescribe the pyridostigmine and give it a try? It's possible that you have MG and the symptoms you have been having are evidence that it's acting up. Pyridostigmine is one of the standard treatments for MG: Myasthenia Gravis Fact Sheet | National Institute of Neurological Disorders and Stroke I can't say anything helpful about the white spots on your MRI except that the number of white spots found doesn't seem to matter so much as their location and appearance. MS is a difficult disorder to diagnose, though, and there are those who have MS without any MRI lesions. I've had 5 MRIs, and on some of them there has been no exact count of the lesions. It is just noted that they are present and indicative of MS.
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Repeal the law of gravity! MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia. Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24 |
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