Hi Harry, so sorry about your wife's illness lately -- I hope she feels better soon:(

I'm just happy to see that there are researchers out there who want to find something to help their patients and not just in it for the money. :rolleyes: I thought that Skip got that point across quite well.

Sorry to hear about Marg, Harry. We all hope that we will stay stable, but don't necessarily . . . no matter what we try. It's such a mysterious & wicked disease!

I'm glad you're still out and about, trying to find something that might help her!

Cherie

Back in May I had a massage and a Reiki session, in June I had another of each. Been walking since May a whole lot better than since prior to my 3/2002 attack. I think it may have been the CMT who did both of those sessions being a big factor. She helped me heal a whole lot of issues. Not all, unfortunately.

But I've been going on walks most every day since May.

Hi Sally,

Yes, it is refreshing to see researchers doing this work for the sake of research and helping people.

I just hope that Skip's point goes somewhere because it didn't work in the case of Prokarin when it first appeared. Some MS docs, the NMSS and big pharma ensured that the established MS medical world kept news of Prokarin in the background. They have tried to do the same against LDN but its low cost and acceptance by more medical people have kept it going. Whether it will survive the fight against the established pharmaceutical industry is another matter. I really hope it does!

Take care.

Harry

Larry honey, this is great.:Tip-Hat: You are not only a LDN success story but also a "Mind over matter, success story.

I mentioned in another thread about my DD's total remission. I think it's the LDN working in the early stages of her MS and she thinks meditation made it go away. It may be a combo of both therapys.

Keep up the good work.:D

Hey there Larry! Glad to hear your "alternative" therapies seem to have helped! Whatever works with this miserable lot we're all battling.

Hi Sally -- Sure hope and pray your DD stays in remission!! It's bad enough for we grandma's, but I just can't imagine having young children and this disease at the same time. :( Go LDN!!

Hi Harry -- Good hearing from you, but so sorry Marge isn't doing well. This is such a fickle disease, one day you're up and the next -- well, you know. I'll be praying for some improvement for her and more better days than bad.

Yes, I too hope LDN doesn't get lost in the pharmaceutical maze. Being they won't be making much money from it, they'll surely be tempted to push it to the background.

Take care everyone.........:)

Surely a combination of directed massaging of my legs, Reiki, and the practitioner of both.


If the one who provided the services were in close proximity, I could have repeated treatments and get better and better. Maybe one day. Unless the healing changes remain from the 3 treatments of each type.

Glad to hear of this interview. In fairness I gotta say that LDN does not 100% stop MS, at least it didn't for me. I've been on it several years now, and still had a few new lesions and 1 relapse.

Its hard to know if I did better with LDN than I would without it, but clearly it doesn't completely keep it at bay.

I do hope they get real trials going with time series MRI to prove it one way or the other, but given the size of the clinical trial pipeline for MS I kinda doubt that anybody will pony up the money for LDN unless somehow a patentable derivative can be produced.

I hear you Dizzy. LDN is definately not a cure, but its the best I have found for slowing/stopping my progression of MS disability.

I've had a few minor flares, but nothing that has advanced my disability. The only thing I can't seem to slow is my aging.:eek: MS and aging really sucks big time.

Anyway, I'm sticking with it until a cure comes along, which means that I will be on it 'til I die of old age.:p

I don't think it's a cure either, but I so think it's the most effective treatment we have at the moment.

Cherie